Neuro visit at long last!

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Regular Member

Date Joined Jun 2007
Total Posts : 53
   Posted 10/26/2007 8:37 PM (GMT -6)   
Gday Guys,
After 5 long months of waiting I have now seen the neuro. He was very considerate - not what I was expecting after having heard disaterous tales of arrogant neurologists. He listened very patiently to my list of symptoms, did a thorough exam (I think!) testing reflexes, sensitivity to touch (etc) and spent a long time examining my numb back by pricking me with pins. He seemed quite troubled by the fact that I "buzz" after any exercise. The result is that I am to have an MRI of my brain and cervical and thoracic spine. He is going on holidays so I am booked in to see him for the results on 14th December. He did not allude to any diagnosis and I refrained from asking, but he wrote on part of the MRI form ?demyelination. I am also going to have lots of blood tests done as well. I am hugely relieved that at long last some investigations are being done. I was sure that I would be sent from this appointment having been told "It's just stress". Anyway, I wanted to share this information with someone. As yet I haven't mentioned anything to family and friends (other than hubby) as I feel it's not worth unnecessarily worrying others. However, as I am a "talker" who feels relief by discussing problems with others, I'm finding holding onto this information really difficult. That's why this board is just so fantastic. It's great to have a place to "unload" and not be criticised for it. I am acutely aware that MS may be one of those diseases that bores healthy friends to death, eventually chasing them away. Noone wants to hear that today our leg is tingling and that our arm is numb, or myriad other seemingly insignificant whinges. Whilst I'm on the topic, one of my fingers has been visibly twitching LOTS lately. It seems to have a mind of its own. Could this be an MS thing, or am I just jumping at shadows now?

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 10/27/2007 10:28 AM (GMT -6)   

Hey Annie,

No one listens better then those of us who have gone through something similar.  I do hope so much that you are on the way to some answers.  It can be a hard thing to hold in.  You may want to get a journal so you can record some of your thoughts and feelings.  And of course you can always come here and vent and express and talk to your heart's content.  There is something so therapeutic about talking to others that "get it".  That desperate need to talk about it gets better over time.  Be patient with yourself.  You have been through a lot and it is has taken a long time to really start  your search.  We are all here to support you on that journey and you are very welcome here.

Love and prayers,


Diagnosed with MS July 2006
Co-moderator MS forum
I was strongest when I laughed at my weakness.
Elmer Diktonius

Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 10/27/2007 10:30 AM (GMT -6)   
    That is truly wonderful that you are being heard!  Good luck with all the testing and hopefully you'll get some long awaited answers soon.  Twitching can be an MS symptom, you may want to add it to your list and discuss it with the doc in December.  It can also be caused by things like carpal tunnel and overuse of the hands with repetive motion, like typing a lot.  Good luck and I'm glad things are moving for you now, let us know when you find out anything!
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Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 10/27/2007 12:47 PM (GMT -6)   
Hey Annie!

WOW...a good neuro appt!! I'm so glad for u...esp since this is u'r first! It does sound like he's being thorough and taking good care of u. I don't know how it is for u where u are, but i've always been able to pick up a copy of the mri films and report within about 2 days of the test. I don't suggest u try to read and dx with this report, but u'll have u'r own copy for u'r personal records. IF u need to see another doc in the future u'll have that to take with. Same with the blood work. Take good care and let us know how u'r appt in Dec goes.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*

Regular Member

Date Joined Jun 2007
Total Posts : 53
   Posted 10/29/2007 1:35 AM (GMT -6)   
thanks Guys,
I feel that I am in good hands both with the doctor and with you lovely people here on the board. Will keep you posted and will continue reading (though I may be quiet until next appointment!)
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