Bye Bye Betaseron

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Regular Member

Date Joined Apr 2006
Total Posts : 299
   Posted 10/27/2007 3:45 AM (GMT -6)   
Hi all...
Bad news/good news.
My neuro sent me to see an infectious disease specialist, who said he wanted me off of Betaseron after all the viruses and infections I've had this year.  I've also had at least 3 relapses this year (another one now) so neuro doesn't think it's working for me anyway.  I feel weaker, clumsier and am able to work less and less.
Good news?  I just got approved for coverage of Tysabri tongue .  I stopped taking the Betaseron and am waiting for my first IV, hopefully in a couple weeks.  I was really starting to get worried that my MS is just proceeding along a little too quickly for my liking (needing a scooter was a real wake up call) and am so relieved that I'm going to be getting such a great sounding drug!! The last year has been so trying, any improvement in this fatigue will be very welcomed.  The neuro thinks the fatigue will be better even in the next couple weeks, just coming off the Betaseron.  I was really starting to lose my positive's amazing how good news can come along just at the right time.
Speaking of good news.. my fiance is FIRST now on the kidney transplant list after waiting 5 years!!  He could get a call anytime.  Scary, but exciting.  I hope this is the start of a new lease on life and health for both of us, we've been through enough for a while.
Take care everyone,
Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 10/27/2007 5:38 AM (GMT -6)   
I hope your health and your fiance's health improve tremendously.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 10/27/2007 10:07 AM (GMT -6)   


You are amazing!!!  You have quite a lot on your plate and yet you find ways to be positive.  You are very inspiring.  Thanks for posting and reminding us all how to stay positive and see the good in life.  I wish you and your fiance the very best.  I will be praying for you.  Don't ever change!!!

Love and prayers,


Diagnosed with MS July 2006
Co-moderator MS forum
I was strongest when I laughed at my weakness.
Elmer Diktonius

Regular Member

Date Joined Mar 2007
Total Posts : 260
   Posted 10/27/2007 10:17 AM (GMT -6)   
Hi Shar,
I hope evrything works out for you and your fiancee. I wish you both the best for a great upcoming new year. My doc suggested Tysabri for me but i am scared. I would love to talk to you about it and how you made your decision to start it. If you can email me shar ,i woud love to discuss it with you. My email is on here. I would appreciate it. Thanks and good luck to you both. You are in my thoughts and prayers.

Dx Dec 06, Rebif,44mcgs 3 x wk, Baclofen, Lyrica, Celexa

Post Edited (Sweetlydia66) : 10/27/2007 9:22:53 AM (GMT-6)

Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 10/27/2007 10:19 AM (GMT -6)   
Hey Shar,
   I'm so excited for you and your fiancee.  Things seem to be looking up for you both! 
Co-moderator for Multiple Sclerosis
Allow Healing Well to continue to help others, clink link for details

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 10/27/2007 12:20 PM (GMT -6)   

Wow...what changes for u in such a short time! I"m also excited for u and u'r fiancee over the possibility of renewed health!! This seems like such a new and exciting place for u both. I'm keeping u in my prayers and hoping for great results for u. Take care and let us know how the Tysabri goes.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*

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