MS and Pregancy

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littlechina
Regular Member


Date Joined Jan 2007
Total Posts : 97
   Posted 10/30/2007 11:30 AM (GMT -7)   
My husband and I are contemplating starting our family. Any moms out there care to weigh in on their experiences with pregnancy and MS? How were your symptoms? Fatigue? Were you allowed any meds?

I appreciate the input! If you had a bad experience, though...don't scare me too much! Sugar coat it a bit, I'm scared enough already! :)

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 10/30/2007 12:05 PM (GMT -7)   
I don't think you can be on any of the disease modifying drugs while pregnant. Several folks have reported that while pregnant their MS symptoms were greatly lessened, a good thing... but some have reported then having an exacerbation after the baby was born.

I've never been pregnant. I chose to not have children when I was diagnosed with MS, not wanting to become disabled and not able to care for them, or somehow having them feel that they had to care for me. But of course this is a very personal choice.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 10/30/2007 12:38 PM (GMT -7)   
When I was pregnant they thought I had lupus, which since has gone to fibro, then MS.  My neuro thinks it may have been MS all along.
Anyway, whichever it was, I went off all meds while pregnant because I didn't want to learn later on that the meds have an effect on my children.  I felt absolutely great during the pregnancy.  Just a little tired, but the excitement of being pregnant got me through that. 
With my first I had a flare about 6 weeks postpartum as the hormones were readjusting.  Lasted 3 days.  With my second I went on a six week course of prednisone and avoided the flare.
Hope this is of some help.  Have you asked your neuro and ob/gyn?
If I can be of any further help, I'm here for you.
Good luck
 
Debbie

tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 10/30/2007 1:02 PM (GMT -7)   
Ok I have talked extensively about pregnancy and MS with tons of docs. I got diagnosed when I had my daughter she was 6mos at the time. pregnancy hormones protect your body for the most part from the MS issues. It is very strange. There are some (few) meds you can take, none of the shots and if you are planning on becoming preggers you have to come off of stuff before you even try. You are very likely to relapse within 3 mos of giving birth (i think it is like a 70% relapse rate) but it is not the kind of relapse that will effect your disability. please contact me if you have any specific questions. I have talked this through with a bunch of docs. i think the one thing they have all emphasized is make sure you have a plan for when you get home from the hospital in case you relapse you will need help, I know I did and no one knew I was sick! good luck!!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 10/30/2007 6:26 PM (GMT -7)   

Hey Littlechina,

I am so excited for you.  Even just thinking about starting a family is very exciting.  It can also be very stressful.  I have no experience with MS and pregnancy, just pregancy and I strongly recommend it!!! It seems like you have lots of good advice.  I wish you the very best.  Keep us posted.

Love and prayers,

 

 


Gretchen
Diagnosed with MS July 2006
Co-moderator MS forum
 
I was strongest when I laughed at my weakness.
Elmer Diktonius
 
 
 

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