Worth a try? What do other ppl say?

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Regular Member

Date Joined Jun 2007
Total Posts : 210
   Posted 11/3/2007 8:32 AM (GMT -6)   
I am dx with Crohn's disease, I use ldn and it has absolutely done the trick for me. Please, enjoy these and 289 other comments on:

 With all the best from Ingrid

(Ingrid, I needed to edit this.  HW does not want articles or studies posted due to copyright issues.  I hope you understand.  Gretchen1)

Post Edited By Moderator (Gretchen1) : 11/3/2007 10:26:04 AM (GMT-6)

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 11/3/2007 8:49 AM (GMT -6)   
The National MS Society (among others) is providing funds to properly test LDN as a medication to help with some MS symptoms. When that is done..and if the results actually show that it DOES something...I'll consider it. Until then, anecdotal evidence is interesting..but that's all it is. Anecdotal evidence. Stories from people who have positive things to say. You'll not find 100...or 6000 stories from people who have used LDN WITHOUT success, for example.

I do hope it works. And glad it might for you. But again, when the proper double-blinded scientific testing comes back, I'll pay more attention.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Regular Member

Date Joined Jun 2007
Total Posts : 210
   Posted 11/3/2007 10:39 AM (GMT -6)   
Hi again :-)
Ok, I understand that some ppl. will wait and see what happens. But as long as I know a big group of ppl. might get some lost functions back quite soon after started using LDN, I think it's nice to know that there is a medication that may make you lead a better life. And better: this medication does hardly any harm to you, it's unexpencive (50 c a day)and has only a few side effects the first weeks.(I slept like a baby immediately when in bed, but wake up and was too awake in the very early morning, maybe for an hour before sleeping again). But you can't use painkillers with narcotics and you can't use immunosuppresants and immunomodulators while on LDN. So it may only suit the persons that are able to stay without those med's.
In Italy there is an investigation going on now: (Sorry that I forgot to copy the url).
Saturday, October 13, 2007, 15:30 - 17:00
Pilot multicentric study of low dose naltrexone in primary progressive multiple sclerosis
M. Gironi, F. Martinelli Boneschi, C. Solaro, R. Cavarretta, M. Zaffaroni, L. Moiola, S. Bucello, M. Radaelli, V. Pilato, M. Rodegher, M. Cursi, V. Martinelli, R. Nemni, G. Comi, P. Sacerdote, G. Martino (Milan, Genoa, Gallarate, I)

Good luck to all that wants to give it a try ;-)
(Sorry again, Ingrid.  Try to find that URL and come back and post that.  Gretchen1)

Post Edited By Moderator (Gretchen1) : 11/3/2007 10:27:48 AM (GMT-6)

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 11/3/2007 11:36 AM (GMT -6)   

Hey Ingrid,

Thanks for posting.  I am sorry I had to edit.  I did a ton of my own research online about LDN.  Unfortunately for us, it seems to work better for crohn's then for MS.  I have a doctor that is willing to let me try it but after hearing that it has been available to MS patients ( off label of course ) for more than twenty years, I changed my mind.  If it were really doing something consistently, it would be tried, tested and FDA approved by now.  My doctor does feels that it may work for certain individuals but again you are limited as to what you can take while taking LDN.  You can take no narcotics or interferons while taking LDN. 

I am very happy it is working for you.  That is so great to hear.  It is a really hopeful development for crohn's and who knows maybe it can be reformulated somehow for MS.  Again, thanks for posing.
Love and prayers,
Diagnosed with MS July 2006
Co-moderator MS forum
I was strongest when I laughed at my weakness.
Elmer Diktonius

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