A little rant and some advice please. Thankyou

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New Member

Date Joined Nov 2007
Total Posts : 6
   Posted 11/7/2007 9:06 AM (GMT -6)   
Hope you don't mind me joining you. 
When I was 18 I had a few weeks of very strange "happenings"  I started to trip up a lot, lost the use of my hands, so much so I had trouble writing, my speech became really poor and after several tests and hospital visits, I was told I had neuritis which would never go away, just get on with your life.    And that was that.    I was never told what caused it, how quickly it would disappear and whether it would ever come back.  I did as told, got on with my life, worked, got married, had two lovely children, carried on working,  noticed the "Tingling" in my legs and hands over the years, but just ignored it. 
In 1997 I was refused critical illness cover and when I asked my GP why, he looked very uncomfortable and said "Erm,.... you have MS"   I laughed, told him to stop being ridiculous and get the correct notes out.   He showed me the letter from the hospital from all those years ago, which said "Patient has MS but I have not discussed this with her or her mother!"   Cheers guys.   Looking back, maybe that was the right thing to do, who knows how I or my family would have reacted.   For the sake of completeness I had a brain scan which confirmed 3 scars.
I am now 45 and during the last few months been under enormous stress caring for a close friend who is terminally ill and since summer have noticed that I have been having some symptoms, which the neurologist says are due to a relapse in MS.    
At weekend my right arm went numb from the elbow down, my right leg is almost as bad, I've tripped up, dropped plates, been so tired I've almost fallen asleep at my desk.  
I guess what I'm asking you guys is, do these symptoms I am describing amount to the MS that I have managed to ignore and deal with for so long?    I suppose I know the answer, but having been symptom free for so long, I'm just struggling right now.
Thanks a lot
Sorry - I didn't realise my name wouldn't come up - my name is Gillian - I'm in the UK. 

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 11/7/2007 9:28 AM (GMT -6)   

It was very common "in the old days" and even occurs now, for doctors to NOT tell patients, particularly young patients, that they had a chronic illness like MS.

The symptoms you describe are very typically MS-type symptoms.  I'm not a doctor and haven't seen your medical records, but if indeed you've been diagnosed long ago with MS...seems reasonable that what you're experiencing now are symptoms related to that diagnosis.

It's great that you've been relatively symptom-free all these years.  And maybe if you can get some handle on the stress in your life your symptoms will subside again.  Take care!

...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 11/7/2007 9:01 PM (GMT -6)   

Hey Gillian,

Welcome to HealingWell.  I am so glad you found us.  That is a wild story you have shared.  I cannot imagine not being told something like that.  It seems you have done really well though.  Will you go and see a neurologist now?  Are you considering a medical therapy to treat MS progression?  I have never heard of a situation like this.   

Good luck caring for your friend.  You sound like a wonderful person.  Don't forget to take care of yourself.  I am sorry you are not feeling well.  Let us know how you are doing.  And again, welcome!

Love and prayers,


Diagnosed with MS July 2006
Co-moderator MS forum
I was strongest when I laughed at my weakness.
Elmer Diktonius

Regular Member

Date Joined Jan 2007
Total Posts : 142
   Posted 11/7/2007 10:42 PM (GMT -6)   
I went to a neuro when I was 17 for MSish symptoms and she told me to "quit smoking" and that there was nothing wrong with me, and off I went... I did not quit smoking until I decided to have my daughter and all my symptoms (shakes and what not) remained. After my daughter I was finally diagnosed with MS. I am also glad I did not find out back then but I also wish I had so I would not have been called a hypochondriac my whole life. Well, I am 30 now and the one good thing I have heard about having MS younger is that you are less likely to progress to severe disability. Basically, the younger the better and I don't know why....

New Member

Date Joined Nov 2007
Total Posts : 6
   Posted 11/8/2007 10:04 AM (GMT -6)   
Hi, yes I'm booked to see the neurologist on Nov 20th. To be honest, I'll just take it as it comes - at least I've had 45 years of relatively good health. I count my blessings, there are an awful lot of people far worse than I'm ever going to be. My friend for one, suffering with Malignant Melanoma, with not a lot of time left -he is 29. Where's the fairness? I think of myself as one of the very lucky ones.

Regular Member

Date Joined Jan 2007
Total Posts : 142
   Posted 11/8/2007 12:58 PM (GMT -6)   
Gillian i am the same as you and think that I am on the "lucky" side of life! 29 is so young and unfair. Is that the person you are taking care of? That must be so hard. watch your stress levels and you and your firend will be in my prayers.

Regular Member

Date Joined Mar 2007
Total Posts : 260
   Posted 11/8/2007 7:25 PM (GMT -6)   
Hi Gillian,
You said a mouthful when you said that there are alot of people worse off than we are. When you see the heartache in this world, i count my blessings too. If this is my curve ball life is going to throw at me, i guess i'll take it. This is where i get my strength. I was diagnosed in Dec 2006 however, the neuro thinks i have had ms for possibly 10-15 years. The more i read about it, the more i think he is right. I started going to a chiropractor for numbness in my toes since i was in my 20's. Now being 41 and just diagnosed a year i think mine was very quiet for years too. No real problems until 2 years ago when i started my search for answers to my problems i was having. Well good luck to you on the 20th, we will be thinking of you. Let us know how you make out and welcome. You will meet alot of awesome people here.
Take care!

Dx Dec 06, Rebif, 44 mcgs 3 x wk, Baclofen, Cymbalta

Post Edited (Sweetlydia66) : 11/8/2007 5:31:30 PM (GMT-7)

Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 11/8/2007 7:33 PM (GMT -6)   
Hello Gillian,
    Welcome to the forum and I have to say you have an amazing attitude.  My heart goes out to your friend, and I am sure he appreciates all you are doing for him.   If this is a relapse, it might have something to do with the amount of stress you are under right now.  Please take care of yourself and let us know how your appointment goes. 
Co-moderator for Multiple Sclerosis
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