Neuro appointment

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mystery reader
Regular Member

Date Joined Jun 2007
Total Posts : 257
   Posted 11/8/2007 8:54 AM (GMT -7)   
Well, I had an appoinment with my neurologist today.  He feels that I am doing well, and therefore he would like me to stay on copaxone for now.  If I continue to have bad reactions he will then want me to consider tysabri.  But I have only had one IPIR out of four that would be described as horrible so I am willing to stay on the copaxone.  I am not ready to make the commitment to tysabri yet, expecially if the copaxone is working.  He does have about 4 patients on ty now so I think more and more doctors are also getting more comfotable with prescribing it.  In fact, that is what he said.The good news is that after testing my eyes, relfexes, gait, etc. I do not have to see him again for 6 months.  He did give me a prescription of bacoflen to take on as needed basis at night for muscle spasms.  I did not want to take anything else on a daily basis so he said I could try it this way.  Does anyone else take muscle relaxants just when you feel you really need them as opposed to everyday?
Barb/mystery reader
Diagnosed April 2007

Regular Member

Date Joined Apr 2007
Total Posts : 334
   Posted 11/8/2007 9:57 AM (GMT -7)   

Hi Barb,


I’m so happy your appointment was a good one, and the fact that your neuro exam itself went so well is awesome! I know you were pretty nervous about tysabri, so sounds like trying to stick with Copaxone is the best possible outcome, especially since your neuro believes it’s effective for you. I’ve never taken anything but ativan and klonopin for spasms on an as-needed basis, but hopefully someone can come along and answer your baclofen question.



Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 11/8/2007 10:12 AM (GMT -7)   
Sounds like your visit was excellent! I can't help with the meds question, though...I don't take any of them.

I hope Copaxone keeps working for you.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Regular Member

Date Joined Apr 2007
Total Posts : 164
   Posted 11/8/2007 8:44 PM (GMT -7)   

Hi Barb,

Congrats on a good visit.  I too had no more lesions after being on Copaxone for a year.  As for Baclofen, I take 20mg each night whether I am spasming or not.  If I happen to miss for a couple of nights, the spasms catch up with me.  If I have bad spasms with a flare, my neuro said to take 10mg during the day, which I have done with positive outcome.  My neuro knows I don't like to take meds, so I am on an as needed and this is what works for me.

Good luck


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