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Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 11/8/2007 9:32 PM (GMT -7)   
Haven;t posted in a while. I sometimes post in anxiety/depression but i think this is were i might be able to get some help. I have been in and out of chronic pain for over a year. Results of MRI on my back shows bulging discs etc. But more recently i have been having pain in my legs both, a fuzzy visual problem in my left eye only. Some numbness in facial areas but none lasting. I have had blood work done things came back normal ranges, MRI on the brain things came out fine then which was about 6 to 7 months ago, could it be possible that If i do suspect MS that this condition can cause these mulitple problems this rapidly. I have a appoinment with a neruo on the 28th of this month to discuss getting a nerve study done are there any particular questions i should ask. I am assuming that MS is not always diagnosed by a brain scan? I am new to this and would like to find out if they go just by leisions on the brain or are there other methods in detecting MS. Also to i have been having dizzy spells and chills like the electricity going through my body. The weather has changed so that could part of the problem but i am not sure if the weather would have anything to do with what's happening, anyway i would like to get some replies even if they are brief i thank in advance. I see my family doc in Dec. But i am not sure how much more pain a can endure at this point i am crying of and on through out the day because of the discomfort, i may decide to go to the hospital and explain everything to them but i am giving it a few more days to see if I get better. anyway gonna go for now talk later Twiggy2. Also to i am most of the time feel tired and sleep alot helps keep the pain at bay sometimes not always though. Bye for now, Twiggy2.
Current meds. Zoloft 100mgs, klonopin as needed, flexeril for muscle spasms and T3 for pain somedays it helps others not.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 11/9/2007 7:31 AM (GMT -7)   
Hi Twiggy,

I am sorry you are having so many problems. Your symptoms sound miserable. I am not sure I can answer your questions but I am going to try. I am hoping others will help me out and maybe you will have a bit of information on MS. Multiple sclerosis means multiple "scars". All of the people I know that have MS have "lesions" that have shown up on an MRI. These lesions may develop on the brain and/or on the spinal cord. There may be people out there that have been diagnosed with MS without lesions showing but I have not heard of that. The usual tests ( not everyone gets or needs every test ) are MRI, extensive blood work to rule out other possible infections. lumbar puncture to look for oligoclonal banding. evoked potentials ( this is a nerve conduction type test ) and a physical exam that tests reflexes and other neurological responses.

You certainly share some of the symptoms of MS but the symptoms are varied and there are many diseases and conditions that cause these symptoms. Certainly share all of your symptoms with both of you doctors. Others here have said that if you write them down in order of severity and add dates to when they started, that can be helpful to doctors.

I think it is very hopeful that if you have had a clean MRI that you probably don't have MS but I am not a doctor. I very much hope that you do not have MS.

Please hang in there. The diagnostic process for MS can be a long one. I presented with obvious test results and symptoms - lesions on the brain and spine, a lumbar puncture with oligoclonal banding, failed the evoked potentials, did not have any other signs of infections in my blood work or cerebral spinal fluid. Once the neurologist examined me, I got the MS diagnosis quickly. Others go years before they get a diagnosis. This is tricky stuff so be persistant but patient too.

From personal experience, I will venture to say that most MS patients do not suffer with the severe pain like you have. There are a few that deal with severe and chronic pain but that seems not to be usual. Have you gone down the Fibromyalgia route? Well anyway, tell your doctors what is going on with you and I wish you the best of luck. Let us know how you are doing.

Love and Prayers,
Gretchen
Diagnosed with MS July 2006
Co-moderator MS forum
 
I was strongest when I laughed at my weakness.
Elmer Diktonius
 
 
 


Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 11/9/2007 10:12 PM (GMT -7)   
Thank you for your reply. Yes i have pondered the thought of fibro quite a few times it has crossed my mind. Because the symptoms are near to what i have experinenced. I was questioned about it once when i was in counselling but never actually diagnosed by a doctor. So i just somedays try as much as i can not to think about to much i am a worrier bad for anxiety LOL. I am going to start a daily journal, something i also have thought of but never acutually continued on with either to busy to tired etc. But i will start again and make a effort to do it daily. Thanks again and i will keep u posted as to whats happeing what ever the outcome i just would like to know whats what at least this way i can get the proper treatment etc Take care, if others wish to post a reply please feel free. Twiggy2. Gretchen if i may ask how your symptoms started. I know everyone is different and not all symtoms are MS related and can go undiagnosed and even misdiagnosed for quite some time before gettng the right answers like Fibro etc Anyway sorry for babbaling on will talk later hope all is ok bye for now.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 11/9/2007 10:50 PM (GMT -7)   

Hey Twiggy, 

I am going out of town this weekend and so it might be a while before I can respond but you can always e-mail me. My symptoms started this way.  I had just a very slight numbness in my left arm and left thumb.  I never sought trreatment because it was so mild.  Then I developed severe and dibilitating vertigo.  It got so bad that I really couldn't walk.  It was horrible and I was admitted to the hospital. That is when they starting the testing.  I was sent home after 4 days althought they almost sent me to re-hab to work on the walking.  I begged to go home.  I have flared two more times since then.  I have developed many residual symptoms since then.  I still have vertigo everyday.  It never leaves me.  I also have extensive sensory stuff - very numb feet.  I have had double vision and have trouble tracking with my eyes.  I have some bowl and bladder problems.  For the most part, it is all managable.  Good luck in your search for answers.

Love and prayers,

 


Gretchen
Diagnosed with MS July 2006
Co-moderator MS forum
 
I was strongest when I laughed at my weakness.
Elmer Diktonius
 
 
 


Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 11/11/2007 10:01 PM (GMT -7)   
thank you, i did forget to mention a about two weeks ago i noticed that while i was walking i had numbness in my right fingers and and the thumb area but the fatty palm part sorry bad detail but not sure how else to discribe it, my doctor is mainly looking for a pinched nerve. But maybe when i have my consult on the 28th i can explain all of this to the neuro. I know for sure that i have muscle spasicity. Tried baclofen but after a while they didn;t help now being on flexeril still not much relief but i am hanging in. Anyway hope you enjoy your gettaway and will take u up on the offer to e-mail. Same for you as well you are welcome to e-mail me as well. Bye for now Twiggy2
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