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mystery reader
Regular Member

Date Joined Jun 2007
Total Posts : 257
   Posted 11/12/2007 6:33 PM (GMT -6)   
I am just so frustrated.  I had another bad reaction to copaxone today --  five reactions in not quite 5 months.  Not being able to breath along  with pains in my chest and lower back is not my idea of a good time. Then came the cold chills and shakes.  I still feel like I have a fever. I called my neurologist and they called back and said he wanted to see me tomorrow so they are fitting me in. He wants to discuss tysabri again.  I think that means he wants me to fill out the paperwork since we just discussed in at my appointment a few days ago.  I want to be on something and since I have already failed the interferons I feel like I do not have a choice.
So if Santa would bring me a new brain or a med I can tolerate I would really aprreciate it.  I have been good most of the time:)
Barb/mystery reader
Diagnosed April 2007

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 11/13/2007 12:27 AM (GMT -6)   
Hey Barb

I"m so sorry this is happening again. I"m keeping u in my prayers for tomorrow's appt and hoping u'll find whatever decision u make an easy one to make. Take good care of u'rself and let us know how the appt goes.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is*

mystery reader
Regular Member

Date Joined Jun 2007
Total Posts : 257
   Posted 11/14/2007 4:09 AM (GMT -6)   
Thanks for the sympathy and feeback everyone! I so appreciate it! I filled out the papework for tysabri yesterday afternoon. So now I just have to wait. I'm happy that I do not have to stick that darn needdle in me anymore, but a bit scared/anxious about the tysabri. Thus I am not sleeping and on the computer at 3 in the morning. Note: I can be a bit witchy when I can't sleep. Watch out!:)
Barb/mystery reader
Diagnosed April 2007

Regular Member

Date Joined Apr 2006
Total Posts : 299
   Posted 11/15/2007 9:42 AM (GMT -6)   
Hi Barb,
Your reactions sound really horrendous, yikes.  I know exactly how you're feeling right now.. so relieved at no more needles but nervous waiting for Tysabri to start.  My first infusion will be Nov. 27th, it can't come fast enough!  I'm having a relapse right now and hope the Tysabri will help stop it.
Keep us posted yeah
Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron

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