sleepless/desparate in Illinois

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mystery reader
Regular Member

Date Joined Jun 2007
Total Posts : 257
   Posted 12/5/2007 3:33 AM (GMT -6)   
Hi everyone.  Well it is 2:30 here in Illinois and once again I am on the awake and on  the computer.  I have been taking ambien since last spring and it gives me about 4 hours of sleep.  Then I wake up and feel compelled to get up and turn on the computer, read, or watch "QVC'"  I also wake  hungry. and want a snack.  What's that all about? The neurontin I take? 
I had problems in the past with insomnia; but not to this extent.I use to occasionally take 1 tylenol PM and it worked.  I have tried Lunestra but I had worse results with it.  My pcp just shrugs his shoulders.  Is this problem due to MS, menopause, both? I see my gyno in January,  Maybe she will have some solutions  Does anyone have any potential/natural solutions I can try?  I am tired!
My insurance will not cover ambien CR.
Thanks, Barb
Barb/mystery reader
Diagnosed April 2007

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 12/5/2007 6:21 AM (GMT -6)   
Have you ever undergone a sleep study, to see what might be disrupting your sleep?  All kinds of issues come to mind; you've mentioned a few -- menopause, the MS, sleep apnea, a combination of drugs that aren't working for you, a disrupted sleep cycle that will take some help to get back on track....  You need to get to the root of it and see if something more effective can be done rather than just prescribe another or different pill!

...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Regular Member

Date Joined Apr 2007
Total Posts : 164
   Posted 12/5/2007 11:07 AM (GMT -6)   
So sorry for your trouble sleeping.  I too have problems with that.  For me, Ambien CR got me sleep but I felt hung over the next day.
I got a lavender linen spray that I spray on my pillow and blankets at night.  It was either from Bath and Bodyworks or the other one.  My brain won't let me type what I'm thinking again.  HAHA
I love my spray.  It doesn't harm the linens.  You could also try one of those soothing noise CD's for relaxation.  I haven't tried them yet, afraid if I listen to rain or waterfalls I wouldn't sleep all night.
Good luck, hope you get some sleep soon.

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 12/5/2007 11:42 AM (GMT -6)   
Hey Barb

Wow...i'm so sorry u'r struggling with this. My mother in law (who doesn't have ms) struggled with sleep probs for years...seriously about 20 years...and FINALLY was convinced that she needed to have a sleep study done. That proved fruitless for her, but i do agree that it was a great idea and can be such a revealing process. It's definitely something u should discuss with u'r doc and consider doing. Another thought came to mind. I've had minor sleep issues for the last few years and discovered something interesting about myself and i suspect i'm not the only one who'll say this. When i wake up hungry and then eat...i find that i sleep better when i do go back to sleep. Of course that's a positive reinforcement for that hunger. So the next night i may do it again...and subconsciously i'm building that need/response action. NO...i'm not saying that's what u'r doing, but maybe do a little experiementing here. Eat something a bit substantial before bed. I tried that and, yes, i continued to wake up and 'want' soemthing to eat, but when i wasn't hungry and didnt actually eat i didn't continue to wake up for that. Another thing, coming to the computer or turning on the tv only excites u'r mind...doesn't relax it and u...and can be lending it'self to u'r inability to get back to sleep. Maybe read a bit or do something. Something that won't bring u to a place of total awakeness and stimulate u to be up. One thing my mother in law tried...out of SEVERAL...was an over the counter product called Melatonin. It's naturally produced by the body and stimulates sleep, but if u'r not getting enuf on u'r own u can supplement. Here are some links: (see Roles in Humans)

Of course with any drug/herbal supplement, u should discuss it's use with u'r doc prior to using it. Some supplements aren't compatible with certain please do discuss this first. For my mother in law, this was the one thing that did her the most good. If i recall correctly, she took one tablet prior to bed and was using it consistantly for some months. She was easily able to stop its use and does occassionally return to using it as needed, tho i'm not sure what amount of time she stays on it or how long it takes to become effective if not effective immediately. I do hope u get some help soon friend. I know it's so hard on u'r body to miss sleep and u work everyday, so that cost is considerably higher for u. Take really good care and let us know how u are.

Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is*

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 12/5/2007 8:11 PM (GMT -6)   

Hey Barb,

Not getting enough sleep is miserable.  I am very sorry.  Just get through the rest of this semester and start you tysabri then you can concentrate on your sleep issues.  I find I don't sleep well when stressed.  Maybe during your semester off, you will find that you sleep better.  Good luck and let us know if you find anything that works for you.  I am sure there are others here that want to know.  ( sunny, rhonda yeah )

Love and prayers,


Diagnosed with MS July 2006
Co-moderator MS forum
I was strongest when I laughed at my weakness.
Elmer Diktonius

mystery reader
Regular Member

Date Joined Jun 2007
Total Posts : 257
   Posted 12/5/2007 8:35 PM (GMT -6)   
Thanks everyone for the advice! Obviously, I cannot spell at 1:30 in the morning! Desperate Barb:)
Barb/mystery reader
Diagnosed April 2007

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