I do plan on speaking to my neuro about
his feelings of botox. The reason is I wish to make sure that he is aggressive about
his methods. They are (ive read) trying to handle it more agressively much earlier as I stated. They feel this may delay walking disability.
My neuro is learning as he goes and largely from me. The top hospital I went to taught me quite a bit which allowed me to update him about
what they are doing now. He was very very
open to all of it.
Have you ever had a toothache feeling in your leg from thigh down? I have a knee that has osteoarthritis in it, i'm not sure if that is causing it or a duel with spasticity and the bad knee. It's exactly like a huge toothache. Wasn't sure last night whether to take neurontin, or baclofen. I ended up waiting and it did leave thankfully. So it would of been a false idea had I taken one of the two meds. I would've thought they were the reason it stopped.
May I ask what medicines you are on daily? I'd just like to make sure that I'm aware of all that is offered for our condition.
I'm on 3x neurontin per day , 300mg ( I do not take this unless in attack). I see no reason and do not wish to develop a tolerance. It has no benefit when not symptomatic. I just began the 10mg baclofen x 3 per day. Copaxone sub q as you are also. Folic acid and B12 shots monthly. I was anemic for quite some time. Eye drops for genetic eye condition that flares when Ms does. Optho thinks that its due to corneas being very sensitive to nerve endings.
That is about
all the meds other than ones i have prn for ibs, hiatial hernia, and im to take motrin when chostrachondritis kicks in. (cartlige where ribs meet in center of chest swells).
My last ekg was abnormal with a normal echo. They admitted me saying it was cardiac but released me the next day with belief that chostrachondritis was why i had chest pain. Ekgs have been changing but they explained this can happen due to chronic disease.
I insisted (they are not easily gotten) a pet scan as I was fearful of cancer. I had began having bone pain on top of all of this other. Now I have osteo that had not been symptomatic until the past 6 months. It basically put my fears at rest concerning cancer and with MS the pet scan shows metabolic changes consitent (sp) with chronic disease. When the cardiologist asked how I talked them into the Pet, I explained to him that when a person feels something moving through their body , most will wonder about
cancer at some point. He agreed and thought it was wise to have that ruled out.
Seeing as how since we have MS that is no guarantee of immuntiy to anything else.
They explained to me that my ekg's change because of MS. It doesn't mean that they are abnormal but rather when compared to others they continue to change.
I will approach my doctor concerning botox. Since this was in so many muscles, I would have to pick the greatest one of hinderance or pain.
My voice is becoming hoarse and I speak lower (was told this was due to talking : tired ie, ms fatigue).
All of this had made me wish to begin classes. If I do not make it for Jan then I will begin in June. Id like to study neurology. I'll begin as if taking course to be a nurse and add other subjects that will align me for later degree.
It will be nice to do it online so I dont have to worry about
the episodes bothering that.
I wish you a lovely day and several symptoms less than ever before!
Every day brings us closer to what we reach for .........in all things.