I had read a little about you through this forum. Can you tell me more. My husband has 2 fiscula and a really bad infection in his lower back. He is unable to have surgery because he will have short bowel syndrome. I was really surpised that you had something along the same problem.
He can't have remicade until all the infection is gone. He is going to the bathroom in 3 spots. One is his ileostomy, then a bulb that on his side, and the last one is on his back. I have to empty that one. So if you having any info please let me know.