reconstuctive surgery

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Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 1/2/2008 10:16 PM (GMT -7)   
Hi everyone, my name is fruitcake and I had my colon removed in july of 07. My origanal diognosis
was crohns' disease in 2002 and I was treated with a number of drugs did clinical trials for remicade
and humira and lived on prednisone for five years. 2007 was really bad and nothing would stop the D
finally they removed my colon and was told maybe I really had collitis. the pathology was inconclusive
and I was told I might not be a good match for reconstructive surgery. Has anybody out there had crohn's
and had reconnecting surgery after colon removal and if so what was your experience?
Thank you, fruitcake

tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 1/3/2008 5:15 PM (GMT -7)   
Hi Fruitcake,
Are you talking about the j-pouch surgery? If so, there is a website www.jpouch.org that also has discussion boards and you can search through posts and find a lot of information.
CD diagnosed in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying UC
J-pouch surgery to be scheduled in 08


Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 1/6/2008 5:51 PM (GMT -7)   
Thank you tbraz. Yes I am talking about the j-pouch surgery. I will check out the web site.
I was told by my doctor that if I really do have C.D. he would not recommend a j-pouch
because it could reactivate the C.D. I am having a CT on thursday and had a scope before
the holidays so I should know more next week.By the way we seem to have the same history
when I had my total colectomy I was told I had UC but the pathology was inconclusive. where
are you located? Fruitcake

tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 1/6/2008 8:05 PM (GMT -7)   
I live in Northwest Indiana

What other tests have you had done? Have you had a premetheus (blood test)? What are they hoping to see with a CT? There are people on j-pouch that were originally diagnosed with UC and later found out it was Crohn's and I think they still have their pouches, but have had problems. I think the major reason against the surgery is there is a chance that Crohn's can spread to other areas of the small intestine.

I hope that things work out for you, keep us posted.
CD diagnosed in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying UC
J-pouch surgery to be scheduled in 08


Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 1/8/2008 3:44 PM (GMT -7)   
Hi tbraz,
I did have a premetheus test back when I got diagnosed with C.D.The C.T will be of my small intestine
and pelvic area. Looking for signs of crohn's. I had an ileoscope in dec. where they go thru your stoma
and take biopsies of the small intestine. My doctor said the scope looked good. I have not heard anything
about the biopsies. I hope I will get the results on thursday when I have the C.T. My doctor said he would
not do surgery if I have crohn's because the chances are high crohn's would return. The only reason I even
consider a j-pouch is because I seem to have an allergic reaction to the adhesive for bags. I have tried all
different products and I still get bad reactions. When I was still on predinsone I was fine but I don't want
to take steriods for the rest of my life. I will keep you posted. Thanks, Fruitcake
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