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Ash83
Regular Member


Date Joined Nov 2007
Total Posts : 128
   Posted 1/5/2008 10:09 PM (GMT -7)   
.

Post Edited (Ash83) : 2/9/2008 4:02:20 PM (GMT-7)


Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 1/6/2008 6:27 AM (GMT -7)   
Hi Ash,

I really don't know if it will still be in there or not, but the pain sounds horrendous! Sorry i can't give any advise other than going to ER if you still have so much pain. Please keep us posted, good luck,

Gillian
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 1/6/2008 10:58 AM (GMT -7)   
Ash,

Hope you're doing better. Prayers for you that things clean out and you are feeling better today. ((HUGS)) Kim

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 1/6/2008 1:00 PM (GMT -7)   
Ash,

I hope you find some relief at the ER. I am sorry that your stoma has been causing you so much pain. My spinach finally moved through at 2:30am (after 30 hours of waiting). I drank lots of prune juice and took 3 laxatives at noon and 3 more before bed.

You have been on my mind a lot lately. Please reply as soon as you feel well.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/6/2008 5:50 PM (GMT -7)   
ash just wondering how you were doing, let us know!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 1/7/2008 3:02 AM (GMT -7)   
Ash,

No need for apoligies, thats what we are all here for. I just hope you feel better and get it sorted. Take care

Gillian x
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.


Wendy88
Regular Member


Date Joined Dec 2007
Total Posts : 68
   Posted 1/7/2008 5:59 AM (GMT -7)   
Ash - i hope you are feeling better today. Not knowing what's going on inside can be scary.  And I don't blame you for not wanting to go to the ER. 
Please keep us updated.
Wendy

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 1/7/2008 5:05 PM (GMT -7)   
Ash, I truly believe that when our bodies are experience high stress (like when we feel pain in the stoma area) our bodies (mainly out gut) becomes more tense. The increased stress and tension make it harder for things to move. This is why when we fall asleep the blockage moves through. I wear a Hollister mini opened bag all day. As you know, this is a small bag and I never have to empty this bag. It stays fairly empty most of the day. However, I put a larger bag on at night because once I am asleep and relaxed, my bag will start to fill. This lets me know that stress plays a huge role in how much stool I produce. This is why I wonder if medicaion would help me. I wonder if there is something out there that would help calm my nerves. I tried a natural remedy called Sam-E but it has not helped. I also tried herbal teas but they just made me more bloated.

Any thoughts?
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/7/2008 6:54 PM (GMT -7)   
I am all for any relaxing meds when I feel stressed. I had several years in my life that were really stressful and during that time I was on Paxil and Ativan or Xanax. It really helped my gut because that was always the first place that I felt any stress. Just felt like knots. I was also taking Bentyl.

Currently, I still take 1 Bentyl every morning to kind of calm things down for my first meal of the day (along with my 3 Imodium). I am on a maintenance dose of 1/2 of the smallest dose of Paxil. Believe it or not, since I am post menopausal, it has eliminated my "hot flashes", so I'm all for staying on that!! No ativan or xanax for over a year now EXCEPT when I feel some sort of partial blockage. And that is really rare these days. I've been know to let the ativan dissolve under my tongue to help get it into my system quicker - by the time I decide that I need it, the quicker, the better.

Just my 2 cents worth, for what it's worth!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/7/2008 7:15 PM (GMT -7)   
Yes, it is in pill form and yes it dissolves.  It also comes in liquid form - my cousin's daughter has seizures and they give her the liquid in her mouth to help with the seizures.  So I know liquid is available too.

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/7/2008 7:54 PM (GMT -7)   
Ash I'm sorry to hear how ur feeling. Ur n my thoughts and prayers. I don't mean to bring it back up but I was just wondering is the reason u can't do a fleets b/c u can't physically tolerate it? Would it even get to where it needed to go since u have the ostomy? I know no one wants another surgery but they couldn't just put u under and go in and clean u out. That's the solution I wish I could have for everything, just put me to sleep and fix it. But realistically, we all know its never that simple.
Peggy when I was n the hospital they put me on ativan and told me it was to help me sleep. I didn't find out until I got discharged and went to get the script filled that it was mood altering. I was and kinda still am against mood altering drugs unless absolutely necessary (but that's just for me b/c I hate taking pills and have a habit of being in denial about my pain/illness sometimes) but didn't ativan make you sleepy? I couldn't imagine taking it during the day. It put me out almost immediately.

O and what's an opened bag? The thing amey mentioned is it actually open?

Ash u could never b a downer, ur posts have helped me so much, we all have our down times and even in sharing those u let those of us that haven't been thru it know what feelings are possible and those that are experiencing it know that they are not alone. So even in ur sadness ur helping others. Besides, I'm learning that sometimes it just helps a little to let all the thoughts filling ur brain come out. Especially in aplace like this where there's always someone who can relate. Don't ever b afraid to share. We're here for u
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/7/2008 8:13 PM (GMT -7)   

opened ended bag vs closed ended bag is what I think Amey meant.

Yes, ativan can make you sleepy, but if you are really stressed and stress is causing blockages, and you are in pain - then I think ativan can help.  IMO.  I have a pretty high tolerance to meds but if I am feeling really stressed, it doesn't make me sleepy, just more relaxed.  Like I said tho, I haven't had to take them for about a year now for stress.  When combined with pain meds, it sure can make you sleepy.

If I am in pain, I am over "toughing it out".  I will take the pain meds.  Pain does nothing positive for my body except exascerbate the problem for me.  Just a vicious circle.   Again, abdominal pain is really minimal for me now, but recently with my shoulder surgery, I took the meds til I felt I could tolerate the pain.  Even shoulder pain affected my gut..  just put it in knots.   I guess I am a wimp with age!!!!

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/8/2008 9:48 AM (GMT -7)   
hey ash
i understand not being able to mentally handle whats going on...i prayed for u last night and will continue to do so. I hope this day finds you feeling better
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/8/2008 5:14 PM (GMT -7)   
Ash,
I'm so glad you're feeling better. Big (((HUGS))) to you.
Cecilia

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/8/2008 5:36 PM (GMT -7)   
Ash iv been worried about u, glad 2 hear ur feeling better
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 1/9/2008 2:52 AM (GMT -7)   
Hi Ash

Glad you are feeling better, i hope you had a comfertable night.
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/9/2008 7:02 AM (GMT -7)   

Ash,

You left us last night in the chat room.... are you ok?  I hope I didn't offend you with my typo last night (?)

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/10/2008 4:53 PM (GMT -7)   

Ash,

Great News!!   Glad you had a good nights sleep, that always makes you feel better.  One thing that I was told to help dehydration, besides drinking, is to increase your sodium so that your body will retain more fluids.  Good luck and keep drinking!

Peggy


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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