Welcome to HW.com. I have had my ileo for quite a long while, but I do remember the discomfort of the rectum being removed. Some folks breeze right thru that removal; however, IMO I believe the rectum removal hurt worse than the abd. surgery for the ileo, etc. Can you take warm baths? Does that help the rectum pain? Is it constant pain? Or more like phantom pains where the body still thinks you have a rectum?
I am very, very prone to internal scar tissue (adhesions) and yes, I experienced a lot of pain with each period after my surgery. Come to find out, I had endometriosis pretty severe and hormone therapies didn't work for me. I know there are a lot of folks on this forum who breezed right thru the surgery w/o any issues. It is a very individual thing.
Keep in mind that you had a very major surgery on your gut, and all your internal organs, etc, are still trying to adjust to a new placement. I know it is hard to be patient, but be sure your surgeon knows of these pains as well.
I don't think any of us would choose to have an ileostomy just because we wanted one, but the benefit of being alive and pain free in time is the positive aspect of having one.
The surgery you had was life altering for you. You lost a major body function. And it is ok to be frustrated over it. But you have to face it and make it over that hurdle and move on with life. I've been there. It took me a while to become a happy person, but once the healing was over, I've never looked back. You too will be able to adjust in time. Hang in there and keep your chin up.
I hope each day becomes a little better for you. Have you been able to get out and walk, maybe thru a shopping mall, etc.? Getting back into a routine, thru this healing process will help.
Please feel free to ask any quesitons you might have. There are a lot of caring, compassionate people on this forum and no question is out of bounds!
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery