New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Ash83
Regular Member


Date Joined Nov 2007
Total Posts : 128
   Posted 1/10/2008 7:24 PM (GMT -7)   
.

Post Edited (Ash83) : 2/9/2008 4:04:07 PM (GMT-7)


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/10/2008 7:39 PM (GMT -7)   
Ash,
I really dig u and ur spirit. I think the option of wearing just a cap and not a bag is liberating and awesome! I'm confused tho, do u have an ileostomy? I haven't gotten mine yet but I thought with the ileostomy we're constantly leaking ( I don't know if that's the right word, I just meant stuff was constantly coming out). Mayb u can clear that up 4 me.

N e who, I don't know what these stoma caps look like, but who's to say if u wore one to the beach someone might not just think its a nicotine patch lol u could b quitting smoking. Bsides, aren't they almost fleshy colored? Lol n e body looking that hard should take u to dinner and a movie first!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/10/2008 8:19 PM (GMT -7)   
Sure! I'd love to see it, as weird as that seems. Just let me know where to look! Thanks Ash, u guys make this so much more tolerable!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 1/10/2008 9:40 PM (GMT -7)   
I had never seen a stoma cap until I checked out your pic. I bet most people would just assume it is a bandage. I wish I could do that but my "friend" is too active!

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 1/11/2008 6:49 AM (GMT -7)   
I hear you Jen! My friend is too active also, even though I have a colostomy ... even in the morning when I haven't eaten anything. Plus, the mound that my stoma sits on is bigger than my boobs so I don't think I could just let it all hang out there although I wish I could feel that liberated! Ash, if you ever get to that point, we wanna see pictures of you wearing it! Maybe it would help spur us on!!!!! yeah
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 1/11/2008 7:21 AM (GMT -7)   
Oh .... and I put up a picture of my newest addition on Photo bucket .... a Christmas gift to myself!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 1/11/2008 8:23 AM (GMT -7)   
Woo Hooo, you go Ash!! Tell me where and when you plan on jumping in the water half naked and i'll join ya!! Of course, jumping into any water that touches or is near Jersey would most likely lead to some other crazy disease, but thats another story.
Honestly, i don' t think having the ostomy is nearly as bad as i made it out to be before i had my surgery. I plan on playing hockey again this summer, i'll be getting back to helping my kids soccer team, just stuff like that which i thought i'd never be doing again once i had the ostomy. Anyone who feels uncomfortable being around me because of the ostomy isn't worth my time.
I know i couldn't even use one of those caps mainly because my stinkin' stoma never stops working. Would be nice if it just took a day off once in a while. I eat, and i'd say less than 15 minutes later it's back working.
So Ash, organize some sort of beach event. Every year in Boston a bunch of weirdos jump into the ocean in December. Get a bunch of people with ostomies, everyone line up on the beach, strip and run into the water!! It'll be a yearly event.
 
Crohn's for what seems like forever
Bagged in August 2006
@ssless as of 11/2007
 
 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/11/2008 9:42 AM (GMT -7)   
Slice ur hillarious!
Ash I really don't think people would kno. I mean it may just b me but b4 I started researching and found this site, I had absolutley no idea what ostomies really looked like. I had this picture of a huge iv bag filled with poo. I think most people are just as misled. They probably wouldn't think an ostomy would look as inconspicuous as it does
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 1/11/2008 10:53 AM (GMT -7)   

OMG, Slice, you crack me up.

My stoma is active constantly, even if I haven't eaten. So, no stoma caps for me!! In fact, my stoma doesn't ever stay quiet for more than about 5 minutes. I have to change bags quick!

But, I, too, am surprised at all I can do with my intestime hanging out of me. Yesterday I had my first dodgeball practice since surgery. I got wacked with the ball right in my stoma. Maybe not so good for it, huh? I'm trying to think of a good way to protect the little guy...haven't come up with anything yet.

Anyway, back to topic - showing off our stomas...at the gym this week I had on a one pice, clear bag. So - y'all know, they ain't to purty when they're a couple days old. My pants slid down a little, and I realized I was flasinh my Personal Trainer with my bag o' poop. He was sweet and didn't freak out, but still, poor guy got a lesson in what a stoma looks like, that's for sure. So, I say go for it. Show it off. Who cares? Now that I'm an official flasher, I'm not so scared anymore.


UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 1/11/2008 1:42 PM (GMT -7)   
Ash..You are amazing! You have such a wonderful attitude. There was a man in the hospital with me and he had an ileostomy. He had tan lines around his stoma area and he was very tan. I asked him if he showed off his bag at the beach and he said he did. He wore a cap and a pair of small speedo briefs. I am sure he was quite a sight at the beach. (Hey Slice, there is an idea for ya..)

I quess in a way I am fortunate. My stoma rarely works...it is nearly 4pm and my stoma has been a sleep all day (as usual).
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 1/11/2008 2:04 PM (GMT -7)   
I wish mine was not so active. Hell, I wish I had as much "energy" as my little friend seems to have!! Even if I did not eat for hours the darn thing would find something to put in the bag! Let us know if you go "capping"

Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 1/11/2008 3:30 PM (GMT -7)   
Count me in for the beach outing. But make it somewhere warm!!! In NY the people who go in the water in December are called Polar Bears (or just plain crazy!!!!)

Richard
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 8 months in ICU at Westchester County M.C. (I think that's a record). Second surgery for resection due to fistulas in January 2007. Been slowly recovering since then. Possible reconnection candidate.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/11/2008 7:45 PM (GMT -7)   
Ash, Your bravery is an inspiration to us all. I say, "Go for it!"  yeah
 
Slice, You crack me up! tongue
 
Amey, You should don a stoma cap and a bikini and takes your kids to St. Pete Beach tomorrow! cool
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 16, 2017 9:35 PM (GMT -7)
There are a total of 2,906,348 posts in 318,946 threads.
View Active Threads


Who's Online
This forum has 158283 registered members. Please welcome our newest member, Coe-Coe.
281 Guest(s), 3 Registered Member(s) are currently online.  Details
JayMot, Traci, mareish