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TGandJsMom
Regular Member


Date Joined Sep 2006
Total Posts : 41
   Posted 1/16/2008 4:57 PM (GMT -7)   
Hey guys!  It's been a while... but I got remarried over the summer and have been busy.  Remember my worries over infertility?  Well they were for naught since I am now 14 weeks preggers!  Yay me!
 
Hard part is that because of my lack of intestines I have been in ALOT of abdominal pain, and I was also diagnosed with malabsorption since stuff passes through so quick.  I mean I swallow my prenatal vits and then get to visit with them again, whole, in the toilet like a half hour later....
 
I am on bed rest and the docs are all freaking out since none of them have delivered a post tc patient before without a colostomy.  One of them wants to give me a temp stoma to relieve pressure when the baby gets bigger... dunno how I think about that. 
 
Anyway....  does anyone have any advice?  I don't know if any of you have had babies post surgery, but I  would certainly welcome any tips you might have for getting through this... I am totally wiped out all the time and feel awful, but that is balanced by my total excitement.
 
So...  hope to hear from ya... yall have a great day!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/16/2008 5:24 PM (GMT -7)   
well the only advice i have is to change the prenatal to a plain old flintstones, and add extra folic acid. That is just as good, and much easier to your tummy!
but also, congratulations!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/16/2008 6:00 PM (GMT -7)   
Congrats!  Such great news for you.  Are you able to find the prenatals in liquid form or sublingual?

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


TGandJsMom
Regular Member


Date Joined Sep 2006
Total Posts : 41
   Posted 1/16/2008 6:10 PM (GMT -7)   
You know my husband suggested that I just give up and go with the gumball vitamins that we give the kids... those actually taste good. I mean, the doctors go on and on about every vitamin we have tried and how it doesn't have enough this or that, but SOMETHING is better than NOTHING I would think.

I am so anemic I can almost not get out of bed to make it to the potty or walk to the kids room at this point.

I tried liquids and they didn't go well with morning sickness, and the sublinguals also for some reason made me ill feeling. I guess next step is gummy worm vitamins... lol

TGandJsMom
Regular Member


Date Joined Sep 2006
Total Posts : 41
   Posted 1/16/2008 6:19 PM (GMT -7)   
Ash, were you pregnant post operation?

TGandJsMom
Regular Member


Date Joined Sep 2006
Total Posts : 41
   Posted 1/16/2008 6:28 PM (GMT -7)   
Ah... I have two from my first marriage pre-surgery. This is definately not the easiest thing I have had to do, but not UN-doable. (is that a word) The abdominal pain is probably the hardest thing, because post surgery you know how we all were... jumpy at the littlest pain worried that something was going wrong....

I will keep you updated so you will know.

Mom2sophia
Regular Member


Date Joined Aug 2007
Total Posts : 262
   Posted 1/16/2008 6:36 PM (GMT -7)   
I too took 2 flintsones and 1 folic acid supplement.
 
I am due for a TC in March.  My hubby and I want to have another baby and I mentioned this to the surgeon, but he didn't seem to think that it would be a problem.  What did you have your TC for?

TGandJsMom
Regular Member


Date Joined Sep 2006
Total Posts : 41
   Posted 1/16/2008 6:45 PM (GMT -7)   
Colonic interta... My transit time was womthing like 28 days. My large intestine was like 15 feet long with no muscle tone and tiny holes all over it. I got regular toxic shock because of hte buildup of stuff in my body and then multiple organ failure.

I am basically okay now, the doctors are just concerned that I am not gaining any weight, that I am not retaining any vitamins, and that eventually the weight of the baby might rupture the fragile anastemosis.

Mom2sophia
Regular Member


Date Joined Aug 2007
Total Posts : 262
   Posted 1/16/2008 8:13 PM (GMT -7)   
Yeah...that is concerning.  I hope you do well...keep us posted.

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/16/2008 8:57 PM (GMT -7)   
congrats on your pregnancy!! i am not nor have ever been pregnant but i can only hope to be able to conceive if ever become fortunate enough to marry and plan a family. My prayers are with you!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


TGandJsMom
Regular Member


Date Joined Sep 2006
Total Posts : 41
   Posted 1/16/2008 10:20 PM (GMT -7)   
Thank you Pray!

Ash - I know what you mean by "looking for information"... It seems like I spent months looking all over the internet... reading medical journals...etc before we got married looking for ANYTHING that might give me insight. It doesn't seem like there are many post colectomy pregnancies. There is a J-pouch group with a few mothers, but I don't have a pouch, so my problems are different.

Ah, well... nothing is simple, but that makes life much richer. If I can bear 25 years of sickness, I can bear 9 months of pain and worry. God will carry me through.

JJSS
New Member


Date Joined Apr 2010
Total Posts : 1
   Posted 4/11/2010 3:02 PM (GMT -7)   
Hi BigMomma...I'm new to this as of today....but was on looking for info. about getting pregnant with an ileostomy or just post jpouch surgery. I found your post about also having PCOS. I had a tc with creation of jpouch surg. in may 2009 and have had 1 failed attempt at reversing the ostomy. I am hoping to try another reversal this summer. I however, also have PCOS..but since my last surgery in OCT of 2009, (this was the failed attempt and creation of new ostomy)...I've been getting my period regularly. I was curious as to how you got pregnant and also..how was it being pregnant? I'm getting married Nov. 2011 and am worried that I will have trouble! Your story gives me how in knowing that in having a tc and pcos...there is a chance. I'm convinced that my colitis and pcos are directly related in some way!

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 4/11/2010 6:45 PM (GMT -7)   
That is so AWESOME! I'm very happy for you and will pray you have an easy pregnancy.
As for surgery, I don't know if I'd do it. I think, if it were me, I'd see how things went.
Why would lack of intestines cause pain? Or is the scar tissue/adhesions what is causing pain?
Please keep us posted!
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 4/11/2010 8:10 PM (GMT -7)   
BigMomma
    Hey girl congrats....  so when did you have your surgery?  Have you had any problems since the surgery?  I had mine on Feb 19 and things are working just great..  would just like to know how you have done?  All the others on here have already given me their input so just would like to know all I can know...
 
Did you eat whatever you wanted at 7 weeks post-op?  Or how did you approach food?  I still get tired pretty easily but each day is getting better...so I would love it if I could hear from you...
 
Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 4/12/2010 4:21 AM (GMT -7)   
Please note that BigMomma's last post was in January 2008!
Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!

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