I had a total illeostomy in 1995. It was an emergency surgery and I had no idea what was going to happen. I had a nurse who had had a illeostomy come in and talk to me afterwards. Unfortunately she had had a very bad experience and scared me half to death, because mine is permanent and I was still just trying to deal with the trauma of the surgery.
It has been has been almost 13 years and I have had very little trouble with mine. Get the doctor to explain the surgery. They will help you in the hospital with put on your appliances and monitoring the flow. Depending on your insurance you should be able to get in home nursing by and ostomy nurse for about2-4 weeks. She will help you become comfortable with the process. Expect pain after the surgery, but once you heal, you will have your life back. And I don't know about you but that surgery was the greatest gift I ever got.
If you want you can check out ostomy supplies online or go thru your insurance to find out what company they use to get the supplies. Get them to send you a catalog.. or check out Hollister or Convatec..these are two of the larger suppliers... check out the flanges, bags, creams, rings etc,
Just so you will feel a little more in control. Sometimes it takes time to find the right product for you skin....sometime you have accidents....sometimes you have to burp the tupperware.
A word of advice, if you have a problem with the smell(usually only when you empty) DO NOT USE MOUTHWASH or VANILLA EXTRACT to combat the problem (advice from the nurse) I could not use mint toothpaste or eat
cookies for months
. Use the products the companies provide.
I was 26 and scared to death, and it was my last chance....I'm still here and still kicking....and you will be too. Just go in thinking everything is going to be fine, the better the attitute the better the result.
I would love to talk to you, if you need a friend...I live in Florida. write back and I will have your posting sent to my e-mail Tam