First off, it's very hard to read your post due to the color of your font. From what I gather you might have irritable pouch syndrome. I don't know where you are in the country but I would highly recommend you go to the Cleveland Clinic for a full evaluation if you want to save your j-pouch. They have tremendous success with troublesome pouches. Outside of that your current doctor has said he cannot do more for you and you will have to respect that. Not all surgeons or even GIs have enough experience with pouch patients to help with difficult cases.
If you are intent with trying to save what you have make that trip to the CC. Be sure to take all of your medical records with you.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free