hi the lori!
iv had crohns since i was 14 i'm now25, i just had my surgery last month, so i think so far i'm the newest. Honestly, Healing Well and all the wonderful people like Shaz, Ash, SJ, Summer, Richard,Cecilia and many many more whom i cant name helped me decide to go ahead and get the surgery.
Mine is temporary, hopefully only 6months, but its no where near as bad as i thought it would be. I was like you, posting in constant pain to the point of tears. Hating my surgeon b/c he suggested that i get the surgery, i put it off for an entire year! My closet looks like a pharmacy with all the pain meds i have (good thing i dont have an addictive personality i guess).
N e way, all the steps everyone gave me were great. I havent gone back to work yet, but i'm considering going back early b/c im stir crazy. This does worry me alot, i havent had any leaks yet, and i'm afraid of the possibility of this happening at work, also i'm nervous about
emptying in public. There are a few things that i wasn't prepared for b4 surgery but they were minor like:
Everyone says that you dont feel yourself going unless ur trying to pass food that was really thick or something. But its good to know that at first, right after surgery, u feel EVERYTHING. It doesnt hurt, just a really weird feeling lol.
I personally, thought i smelled myself all the time at first, but my mom has a very sensitive nose and she said she never smelled me. Sometimes (rarely) in the bathroom, if i dont spray when i empty, but thats like any one taking a poo.
Also, i'm still finding out about
getting supplies. What the hospital sends u home with will not necessarily be what you need to use. Therefore, dressing in my case is still pretty much sweatsuits, b/c i just got my bags today with the air filters, hopefully this will help in the gas.
Lastly, the gas at first can be really loud. But it does go away, this was another thing i posted and asked about
and everyone told me it would. You'll b expelling gas for days mayb weeks after having surgery, i guess this may depend on how u get it done. I got mine done laproscopically so there were no staples, just two tiny holes that they went in thru.
This site has been such a help to me. I hope i can be of similar help to you. Please keep us posted and let us know what u do.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Worst year ever!
"For God has not given us the spirit of fear....."
Where does mine come from?!
Temp Ileostomy performed 1/29/08
Healingwell.com has been my Godsend...Thank you
Post Edited (praying4healing) : 2/24/2008 6:23:02 PM (GMT-7)