I am not trying to sway you to a jpouch but I do want to clear up some misperceptions. While frequency may be high it's not like sitting on the toilet with UC. It takes as long to empty a pouch as it does to urinate.
Do you know how many times you pee per day? Doubtful. That's why it's hard for me to say how many times I empty my pouch per day. I have no idea. I do know that many times I go to the restroom to urinate and discover I need to empty my pouch too.
The other misconception is with failed pouches. Generally 95% of jpouchers are satisfied with their surgery and all of those who have had failed jpouches were happy to have given it a shot. The jpouch surgery has become the gold standard of all surgical choices for UC. Does that mean it's the best, NO. What is best is for each surgical patient to determine their lifestyle and make their decison based on that. I wouldn't worry about 2 surgeries for a jpouch. The first surgery is the major one, the second surgery is just closing the temporary ostomy. Not much involved but sewing up a 3 inch incision in the belly.
It is your choice and ultimately you have to be happy with the surgery type you choose. It will make your recovery easier if you are vested in the choice. I would suggest you meet an ostomate and a jpoucher face to face before deciding (when you get to that point).
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free