Hi u guys...its official. I'm an ostomate

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Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 1/30/2008 1:59 PM (GMT -6)   
Just wanted to let u all know that the surgery went ok. It was laproscopic and I havw a huge red ring going thru my stoma which looks huge itself. I'm tryng to stay poeitive but its difficult. I was ok this morning until one of the nurses came in to give me my "ostomy teaching" she's not an ostomy nurse, the one I met with is the only 1 for the hospital .and she's not n town. I'm not confident n the information that I got from this nurse which was quick and very little. The bag and the ring look bulky to me and I don't see how n e one will b able to miss it. The surgeon put the stoma a little closer to my belly button than I was marked. My mom said that bc I'm so small they said they didn't have much room. Now my flange has to b cut on the top corner. Will this cause leaks? I'm so aggravated. I guess I just needed to vent. Thanks for ur prayers and well wishes.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!

Regular Member

Date Joined Mar 2005
Total Posts : 35
   Posted 1/30/2008 3:09 PM (GMT -6)   
Hi there. This is my first post although I have been following your story on here and glad to hear the surgery went okay. I am having a temp ileo on 2/20/08 for fistulizing Crohn's and well I am scarred to death and have been too afraid to post until now. Just wanted you to know that I have been thinking about you and was wondering how everything went.


Post Edited (dodgegirl) : 1/30/2008 1:15:02 PM (GMT-7)

Regular Member

Date Joined Feb 2007
Total Posts : 420
   Posted 1/30/2008 4:40 PM (GMT -6)   
I felt the same when I was first healing from surgery. I also thought the bag and stoma would be noticeable. Remember that the appliance you are using now will most likely NOT be the appliance you use later on. Also, in the beginning you will have lots of gas, and your output wil be watery - both of these things will cause you bag to poof out. Both of these things will also go away and get better. It does take time, but this is the hard part - things will get better! I'm glad you got a chance to check in - we were all thinking of you yesterday.
Oh, and the nurses that come to see you in the hospital do tend to give very little information - at least mine did. But you've got tons of people here to give you some straight answers! :)
Keep checking in - we're all here for you. Congratulations - you're on the road to recovery now!
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
Surgery August 24, 2007. Home now!

Regular Member

Date Joined Nov 2007
Total Posts : 272
   Posted 1/30/2008 4:57 PM (GMT -6)   
Hey you,
It didn't take you long to be back posting!!! So glad all went well, please be aware that at first your stoma will be bigger but through time it will get smaller.
You have to remember you are still swollen from your op, things will settle soon, i'm sure. You sound good although i know you are still concerned and anxious.
Once you see your own stoma nurse you will feel better and reassured, they won't let you out without you being able to change your bag, (well my stoma nurse didn't).
You get some well earned rest and keep us posted.

Congratulations Ostomate!!!!!! & Big (((((((((Hugs)))))))))

Gillian x
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.

Veteran Member

Date Joined Nov 2003
Total Posts : 518
   Posted 1/30/2008 4:59 PM (GMT -6)   
Just try to keep your spirits up--it's hard for all of us in the beginning. Also, keep in my even though the surgery was laproscopic you still will have some swelling. I know I had a hard time remembering what the ET nurse told me b/c of the pain killers; needless to say, my first emptying attempt was a mess!!

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 1/30/2008 5:10 PM (GMT -6)   
So good to hear from you so soon! Good for you.

Yeh I agree, some "nurses" really don't know much about the ostomies but the ET will be the one to tell you everything in depth. Usually they send you out of the surgery with a post op appliance that I wouldn't even think about choosing to wear! Hideous, usually clear so you (read that as THEY) can see everything that is going on. For a reason I am sure.

Good luck to you - I was thinking of you all day yesterday.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 1/30/2008 6:59 PM (GMT -6)   
Wow!! I wasn't expecting to hear from you so soon!! :-)  I've been praying for you and am so glad you're doing well. Your stoma is swollen right now, but it will get smaller.
I used to cut the edge of my wafer to avoid my belly button, and it didn't cause any leaks. Then, I started to cut the hole in the wafer a little bit off-center, so when I put it on, it doesn't come near my belly button. Doing that shifts the wafer over a little to the right, if that makes sense.
Please don't worry about the applicance being bulky. The one you'll use once you're out of the hospital will be flat, and nobody will be able to see it under your clothes. Please ask us any questions you may have and thanks for keeping us posted on how you're doing.
Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)

Regular Member

Date Joined Jul 2007
Total Posts : 280
   Posted 1/30/2008 8:57 PM (GMT -6)   
I would let your surgeon know that you are uncomfortable with changing the appliance. When I came home from my first surgery they set me up with home care where an ET nurse came to my house 3 times before my post op check up, ask if they can do that for you. I Just went for my post op check up and met with the ET nurse and she worked with me until I felt comfortable. They can give you samples and you should not have to wear the same appliance as they give you when you first leave the hospital. It makes a big difference when you are comfortable changing your appliance, and it will get easier and you will get the hang of it, it just takes time. Good luck on a speedy recovery, every day should get a little better for you, it seems like you have a great support system with your sister!
CD diagnosed in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying UC
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008

Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 1/30/2008 9:04 PM (GMT -6)   
Thank u guys. I know I posted quickly it was just that I'm feeling a little...I don't kno confused, angry, disappointed, and I felt only u guys would understand. My moms been here with me, but I'm tryng 2 keep my spirits up for her. N e way, hopefully I'll feel better soon.

P.s. N e body heard from dutchess? Last I read she was really sick and going 2 see her doctor. I also hope lipgloss is doing better. I can't wait 2 go home and I know she can't either.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!

Regular Member

Date Joined Aug 2007
Total Posts : 185
   Posted 1/30/2008 9:10 PM (GMT -6)   
Just wanted to say I'm so glad you've came thru surgery okay. Hope things continue to progress smoothly for you and you're home soon. ((HUGS)) Kim

Regular Member

Date Joined Aug 2007
Total Posts : 254
   Posted 1/30/2008 9:17 PM (GMT -6)   

Dear Praying:

It is so good to hear from you so soon! I think it is only natural that you feel a little sad, confused, aggravated, etc. so soon after surgery. I think it is the beginning of the healing process and I'm sure you will start to feel better soon when things settle down.

I too had some uninformed nurses at first but you will find someone soon who can really help. Plus you are plugged into this forum which is an ostomate's best resource!

How great is it that you are already asking after your other ostomates! You've really got the spirit of this forum in that we are all here to help each other!

God bless you and speed your recovery.


Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 1/31/2008 12:12 AM (GMT -6)   
i am glad to hear you are doing good! The nurses on the floors aren't trained specifially for the ostomies, they are trained in general for everything (DH is a nurse, so i know about that stuff) the clear bag is so they can make sure that the output looks like it should. They will probably be emptying your bag for you for a while too, they have to measure how much comes out.
your stoma will get smaller, mine shrunk alot, and all that gas will go away, it takes a little while though, so don't panic if it isn't gone in a week or so, it will have lessened by then though.

Veteran Member

Date Joined Jul 2006
Total Posts : 942
   Posted 1/31/2008 3:01 PM (GMT -6)   

I am glad the surgery went well. Sorry about the placement problem hopefully, you will get used to this location. How are you feeling? Have you been able to eat anything? How is your ostomy function? The bag does "feel" obvious at first and it feels very heavy, like a weight. Your stomach muscles will adjust and soon you'll rarely think about it. Like you, I am pretty small so I wear small bags made by Hollister. I like these mini bags the best. However if you have high output, this may not work for you.

Remember to play with different products and find the ones that work best for you. It is also normal to feel that you are on an emotional rollercoaster. Some days you feel ok with your bag and other days you just want to cry at the reality of having a bag. This is normal. Allow yourself to feel these emotions don't surpress them. Feel free to come into the forum and vent if you need it. We understand your situtation and want to be here to help you through.

You are doing great!
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot

New Member

Date Joined Nov 2007
Total Posts : 4
   Posted 2/1/2008 10:31 PM (GMT -6)   
So many of you forgating somthing !!!

"For God has not given us the spirit of fear"
BUT !!
God have given us the spirit of survivor.!!
Bionicman {at82]
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