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Caro1014
New Member


Date Joined Sep 2007
Total Posts : 17
   Posted 2/5/2008 3:16 PM (GMT -7)   
Hi everyone,

I had my surgery nearly a month ago now but I was only discharged from the hospital on Monday. There were a few post-op complications, namely when, a week after the surgery (I had my large intestine and rectum removed), they took out the staples and the wound opened. I never felt a thing, it was my mother who was walking me to the bathroom who noticed blood dripping down - I thought she was talking about the wound oozing a bit, which it had been prior to this, but she insisted I go back to the bed and got a nurse who took one look and promptly ran for a doctor. The long and the short of it is that I was taken down to theatre an hour later to have it re-stapled under local anaesthetic. It was not the most pleasant of experiences. So they stapled some of it again but left part of it open to allow it to drain freely. So while some of it has begun to heal, I have a very deep hole in my abdomen that is taking it's time to heal though thankfully, it's clean and infection free. That's why they kept me in longer, to keep an eye on it.
But I'm home now and learning to eat again. It's amazing what a mindset I had about food for the past few years. I realise now I was considering it a bit of an enemy. I get full so easily though, very gassy. So it's hard to eat small meals frequently when I feel full from the bit I eat previously. And I get tired so easily too. And my abdomen is all tender and swollen. I have a lot of adjusting to do but I'm looking at the big picture and telling myself that this will pass because two weeks ago, I found it hard to move about and my mobility has increased a lot since. So one day at a time kind of thing.

One thing though, I found the output does be very watery in the afternoon when I drink something. The bag fills so quickly. I'm a bit worried I might be doing something wrong.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/5/2008 4:00 PM (GMT -7)   
Congratulations on your recovery. You have a great attitude - one day at a time! That is a good mindset and a very good attitude to have.

What are you drinking in the afternoon? Is it carbonated? High in sugar? Carbonation will cause you to be gassy. And sugary drinks could cause watery output. You are doing nothing wrong. Just keep drinking, drinking, drinking!!!! Oh yea, caffeine can cause watery output too!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 2/5/2008 6:07 PM (GMT -7)   
You are very brave and very optimistic because it sounds like it has been a long road but you have such high spirits. It is all uphill from here so congratulations on your surgery and discharge from the hospital!!!
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 2/5/2008 7:50 PM (GMT -7)   
Wow Carol.

Glad you're home. I was so ready to get out of the hospital and I was only there 11 days.

You will feel better each week. It took me 3 months to really feel like I was getting better. You've been through a lot. You're brave! Don't get impatient with your body. You have a great attitude.

((HUGS))
Kim

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/5/2008 8:51 PM (GMT -7)   
glad you are home! you will get to figure out which foods make you gassy and give you lots of output. At first it is very common to get full quickly, or very gassy, that will subside.

tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 2/5/2008 9:37 PM (GMT -7)   
There are foods that can help thicken your output such as bananas, rice, oatmeal, applesauce and munching on pretzels when you drink help too. You can also ask your doctor about taking Imodium if you are having too much watery output. It does take time for your body to adjust to it's new plumbing, make sure to get your rest. It also might take a little time before your appetite comes back, that's normal.

Congratulations and I hope that every day gets better!

Theresa
CD diagnosed in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying UC
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/6/2008 9:16 AM (GMT -7)   
I'm glad ur home too! I was only in 5 days and I couldn't take it. And one thing they say that is so true is that u tend to heal better when u get to go home. Its been a week since my surgery (it was laproscopic so I'm sure ur healing will take more time) but I wanted to go out so badly, iv already been out to dinner with my mom and brother and I also managed 2 walk around target for a little while. But I have to catch myself I do still get tired quickly. I even have trouble making my bed. I'm hoping that's just from the surgery itself.

N e way, u inspire me. I'm trying 2 b like u and take it one day at a time. Congrats on being home!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


Caro1014
New Member


Date Joined Sep 2007
Total Posts : 17
   Posted 2/6/2008 1:24 PM (GMT -7)   
Thanks everyone, especially for the advice. It's so good to have this place to talk to all of you. I'm doing my best to keep my attitude positive but some days are harder than others. I will admit that I have had a few good crying jags over the last week or so. I think I'd feel better if the wound started to heal a bit more. It scares me a little that I have this hole basically and there's nothing I can do about it. I have to bide my time. I don't sleep too well either. I get very restless at night and turn from side to side, not easy with the dressing sometimes. But I just can't settle.

peggy113, I'm been drinking a bit of flat 7-Up but mostly I drink water or cranberry juice. The output is thicker in the early morning, it's just come afternoon that it changes.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/6/2008 6:50 PM (GMT -7)   

Caro1014,

If you want to experiment just a little, try eating a small portion of applesauce with your lunch, or part of a banana to see if you can slow the afternoon output a bit.   Just a few bites may be the key to start thickening things up in the afternoon.  

Do you drink coffee or caffeine in the morning when you get up?  From experience, that will make things speed up too.  Some ostomates have to increase their sodium intake to help the dehydration.   So a few salty pretzels, crackers, even chips are a good thing.

Please keep in touch and let me know what works for you.

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/6/2008 9:03 PM (GMT -7)   
Caro-you can also get these gel-x tabs from edgepark (other places may have them too) but you put them in your pouch and they soak up the output, so that it is thicker.
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