Ugh. Ugh. UGH.
For a few weeks I was getting two-three days at least. Now I'm back to leaking evey day. ARRRGH. Again, it isn't like stool is leaking -it's just goo from the darn sore. This thing is SERIOUSLY bugging me!!!!! It doesn't hurt or anything, but I am SICK of changing every darn day. The Doctors keep saying it's just a recurring ulcer and they can't do anything about it. I don't know what to do!
On another note, those sure seals are saving my life!!! This leak started at 7 AM and it's 4:15 and they are holding strong. I can see that my wafer is soaked through, but the seals are just fine. I got through my entire workday, so I can home and change - otherwise I would have been changing here at work, which I don't like doing at all!
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
Surgery August 24, 2007. Home now!