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Ash83
Regular Member


Date Joined Nov 2007
Total Posts : 128
   Posted 2/13/2008 10:06 PM (GMT -7)   
I remember seeing your wedding pictures on photobucket and wanted to know if you had your ostomy when you walked down the aisle.
 
I'm trying to figure out what I'm going to wear under my dress that will work for both me and the ostomy.
 
 
 

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 2/13/2008 10:45 PM (GMT -7)   
Hi!

I did not have my ostomy - although now I kinda wish I did. I spent my wedding day and my honeymoon sick with UC! I do however, have to be IN a wedding this July. I went to try on bridesmaid dresses, and I wore a Spanx shaper. Have you heard of Spanx? Totally awesome stuff. Very comfy, yet it really holds stuff in.

I wore this:
http://www.spanx.com/pls/enetrixp/!stmenu_template.main?complex_id_in=477024.488695.685819.1046838.page

I like the Body shapers with legs, I feel like it holds the bag in place really well - the "dress" ones don't feel as secure to me. The slimming, stretchy material flattens out the bag sorta, so it doesn't bulge as bad.

Check out the site - they make body suits, capris, panties...so whatever you prefer is probably on there. It's been the best thing I've ever tried with the bag. The regular store bought body suits and shapes are toooo confining and tight feeling foe me - these are way more comfy.

When are you getting married? You must be so excited!!!
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/14/2008 9:59 AM (GMT -7)   
im not getting married but thanx 4 that link, i think im gonna try some spanks to feel more secure
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 2/14/2008 3:20 PM (GMT -7)   
Joann,

Does this spandex block your stoma from working? All of my pants hit my waist right at my stoma and I constantly have to push my pants down a little to adjust for my stoma.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/14/2008 5:10 PM (GMT -7)   
Hanes also makes a pany - Not Just Another Panty - that has been around forever. That's what I began wearing right after my surgeries for the comfort of that little bit of pressure so my belly didn't hurt so bad when I walked and moved about. And, now 23 years later, I'm still wearing them. Holds stuff against the body and very comfy. I buy them 1 size larger than I would normally wear. I don't want them tight, but rather just a light support. My security blanket :)
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 2/14/2008 5:26 PM (GMT -7)   
Spandex bugs me a little - it kinda makes things "pancake" around the stoma, and I have to stretch it out to let things spread out a little. :)
But the spanx stuff isn't as tight, I guess. I don't know, but it works pretty well without stopping the stoma from doing it's thing.
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 2/15/2008 10:15 AM (GMT -7)   
Ash - get your underthings before you alter your dress. You should anyway, because then they'll alter it to EXACTLY what you need it to be. Including making adjustments if necessary to hide teeny parts of bras or whatever that might stick out. On mine, if you looked down on me, you could see the top of my bra (not from the front, but from the top). I'm short, so this was a problem. My seamstress actually sewed a bit of velcro to my dress and the bra, so you couldn't see anything anymore! Waaaa-LA!
Also, If you have a body shaper on, or whatever, it would conceal the bag - at least enough to where it isn't hanging all out. When I told people at my gym about my issues, and then the bag was sorta visible under my workout spandex, I just told him it was a bandage appliance for a recent surgery. You could tell your seanstress something like that if she sees an outline or something. In anycase then you can feel free to put on or take off the dress in front of other people - you wouldn't actually be exposed. :)
Let me know if you want any tips - I had a pretty big wedding, and I'm happy to share what I learned! Or, if you just want to gush and rant and rave and brag and need someone to listen, I'm here. I know my family and friends got a bit sick of me after a point! LOL.

Send me an email, if you want. :)
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/19/2008 7:52 PM (GMT -7)   
ash im glad u have something to keep u so excited...i'm not getting married and im excited for you! lol. please keep us posted on the plans, i know u'll b very busy soon
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 2/21/2008 1:02 PM (GMT -7)   
sfgiantsjo,

i see how the spanx might work. I currently wear leggins daily. Thank God they're in style right now and have been a life saver. My whole things is, depending on what I eat, the consistancy gets thick and when i'm wearing something like that i feel like it has nowhere to go so pushes out of the wafer and causes a leak so I would assume that this would happen with the spanx as well. What r your thoughts on this? Do u understand what i'm trying to say??? is your consistancy thick or more watery, maybe watery makes spanx easier to wear?
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 2/21/2008 1:49 PM (GMT -7)   
My consistancy can be pretty thick, actually. So far, I haven't had too many leaks due to it pancaking at the top like that, I actually will try to indiscreetly (or in a restroom), kinda run my hand over the bag to "push" stuff down so it redistributes more evenly. I don't get to much of that with Spanx, though. A little, but not much. Stuff still seems to slide down where it should!
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!

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