donut...or other's with closed fistulas

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praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/17/2008 8:11 AM (GMT -7)   
I was just wondering how long it took for your fistulas to close and if you were on any meds to assist in the closing while u have the bag?
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


donut
Regular Member


Date Joined Jan 2008
Total Posts : 54
   Posted 2/17/2008 12:40 PM (GMT -7)   
It took about a month for it to stop draining, but with my last x-ray, it is completely closed at just about 3 months...about 11 weeks. I have not had any real problems with it once it stopped draining. There was no pain, but I just needed to keep the stoma until the hole was completely closed. I have not been on any medication. I just have rested a lot, ate plenty and have been taking Centrum liquid vitamins. I have a lot of sick time at work, so I have not returned since I am waiting for my reversal. As an elementary teacher, I was concerned that I would get strep or stomach flu and it would just delay my reversal. Can't wait to have it all over!

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/17/2008 6:43 PM (GMT -7)   
i'm so happy for u. ur the first post i've seen with a closing fistula and an ostomy. I'm not taking any meds right now either (except humira), and my doc wanted me to wait for six months for closure of my rv fistula. I'm relieved to know it took a while for drainage to stop...i was worried b/c im still draining, and i'm still in minor pain once and a while (no where near the pain i was in be the surgery. You give me hope that MAYB i'll be able to have the reversal sooner, and that my fistula may really close on its own.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


donut
Regular Member


Date Joined Jan 2008
Total Posts : 54
   Posted 2/17/2008 8:34 PM (GMT -7)   
Everything I read said that fistulas don't close on their own, that they have to be repaired surgically. My doctor said that she would do that if it would not close, but with nothing moving through my colon, I guess it finally just dried up and then healed. She said that she was confident that it would heal and I guess she was right! Now we will see how everything works once I have the reversal. i would have to say that to me, the colovaginal fistula was worse than the ileostomy. I didn't feel like I could go anywhere because of the constant drainage and odor and I didn't even want anyone coming over to visit. I had never even heard of that kind of fistula, so it was such a shocker to me. Good luck to you..you will be healing and before you know it, you'll be so much better. Two months ago, I didn't think I would feel this good. I have tried to have a sense of humor about the whole thing and that has helped a lot.

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/18/2008 1:31 PM (GMT -7)   
Sj,

No I haven't had n e surgeries for my fistulas. My doc said surgery wasn't an option bc I was having constant active infection. So he said either way I needed the ostomy.

I wonder if the time that u have the fistulas b4 getting the ostomy matters. How long did u guys have yours? Iv had perianal disease for a while. But my rv fistula didn't present itself until mayb a year and a half ago.

I hope that doesn't lessen my chances of closure. My doc said six months. I don't think I could handle it 4 much longer.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


donut
Regular Member


Date Joined Jan 2008
Total Posts : 54
   Posted 2/18/2008 2:18 PM (GMT -7)   
My fistula occurred because I developed an abcess from my colon resection. I have had a hysterectomy, so I think I did not have periods to complicate the healing process. I did not have anything done(plugs or otherwise) to heal the fistula. my reversal is scheduled for 2 weeks from now...can'twait.

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/18/2008 6:26 PM (GMT -7)   

sj,

i've read about females getting fistulas from episiotomies. How many remicade infusions have u had? i've been told that remicade is usually successful in closing them. I wish u the best of luck! please keep me posted...


25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you

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