Need help with leaky bag on 4 month old baby

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New Member

Date Joined Feb 2008
Total Posts : 1
   Posted 2/17/2008 10:32 PM (GMT -6)   
Hi there all! I'm new and hoping someone will have some suggestions on different products for infants. My baby girl (4 months old)had a pull though ostomy 3 weeks ago, she will have the reversal in 3 more weeks. She was born with a complete duplication of her colon with a recto-vaginal fistula ie. the extra colon emptied though a hole inside her vagina. They were wanting to remove the extra colon, but could not because both shared the same blood supply. So they made the two into one by removing the wall between them and stappling them together. We are just waiting for the colon to heal b4 they hook her system back up.
Anyhow... we were given a hollister (sp?) bag with a 2 part system, and the dad-gum thing is a pain in the butt! I have never gotten one to stay on more than 2 days b4 it leaks everywhere. If the skin barrier doesnt leak, then the foamy piece that sticks to it does. I have tried patching it with her "stoma salve" as I call it....but it is stoma adhesive by convatec, and that will last a few hours....but it fails in due time.
I think with wet diapers, and fat wrinkles and also a large C section type incision I'm trying to fight a losing battle against leakage. I have tought about purchasing the Convatec 2 piece little ones system....
If anyone has any ideas or experience with this stuff I'd be greatfull for the help!

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 2/18/2008 7:40 AM (GMT -6)   
I'm sorry you have to go through this, but am happy that your little girl is going to be okay. :-) My heart goes out to you both.

Have you tried calling the different ostomy companies and telling them about your situation? They can send you free samples, so you can find the appliance that works best for your daughter.

Please keep us posted on what you find out and how she's doing.

Take care,
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

Regular Member

Date Joined Aug 2007
Total Posts : 254
   Posted 2/18/2008 8:47 AM (GMT -6)   
Dear Alley:

I am so happy that your little girl is OK! Cecilia, as usual, has hit the nail on the head. The companies are an excellent resource for this type of question. I think your technique is ok. You need to have the area clean and dry before attaching the device. It also helps to keep the area as flat as possible before applying. Easier said than done with a wrinkly newborn! Good luck and keep us posted.

Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 8 months in ICU at Westchester County M.C. (I think that's a record). Second surgery for resection due to fistulas in January 2007. Been slowly recovering since then. Possible reconnection candidate.

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 2/18/2008 8:17 PM (GMT -6)   
The only other thing that I might add to Richard and Cecilia's comments.....

You mentioned you were using Stomahesive Paste? Are you able to get the skin cleaned well, with maybe an adhesive remover made for removing these adhesives, as well as a light soap and water? Sometimes they leave residue if you don't get the skin cleaned well, and that will affect how well the new one sticks.. or leaks!

Please do call Convatec or any of the other companies and ask for samples. Use their expertise and advice. Please let us know how things go for you. Best of luck to your little one.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 2/18/2008 8:30 PM (GMT -6)   

i dont want to sound like a broken record, but i admire your strength and your daughters. However, when i was reading ur post my first thought as well was to call the different companies and explain your situation. They send samples and such so u can try out different things. Stay strong and please keep us posted on ur little Angel, I hope u both get relief soon.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
Temp Ileostomy performed 1/29/08
Still Adusting has been my Godsend...Thank you

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