Make sure you wife is eating enough salt to help retain those fluids. A better hydrating beverage can be ordered online at www.vitalyte.com This product is far superior to Gatorade, has less sugar and more electrolytes. It's the only hydrating beverage I drink when I am concerned about water loss. I am sorry this nightmare just seems to continue. I wish you boths success in getting the hydration under control.
Sue and Peggy, This is Jan typing now. Thank you for your replies. I ordered some of the Vitalyte and it should be here next week.
I have tried Benefiber, Metamucil, Loperamide 2mg, and and all the food to thicken the output for the last two months since I had the last surgery and the ileostomy. Nothing seems to help that much.
Was in the hospital for four days three weeks ago for dehydration and back again this week two times for IVs for dehydration.
How long does it take for the output to slow down after surgery? It was slow to start with when I wasn't eating very much. That was for the first two weeks.
The last seven months I have stayed home all the time. The only places I have been is in the hospital or to see the Dr. This has really been hard and am hoping that we will be able to start getting out more before long.
Keep your chin up -- things will get better for you. You may have to tweek your drinking and diet. Tbraz has good suggestions too.
You mentioned that you have Loperamide 2mg. How many and when are you taking them? Don't be afraid to take them... like Tbraz said, 8-10 daily can be tolerated for some of us. I was taking 9 for years, 3 prior to each of my main meals. My system/body has changed and now I only start with 3 in the morning. You will get to know your body and will be able to "listen" to it in the future as well.
For now, keep hydrating and snacking....try not to let your stomach get empty. Drink and snack frequently. Lots of smaller meals are probably a good thing for you right now. Switching to less sugary drinks, along with the Loperamide, increased sodium, and frequent snacks should help you. Oh yea, and try to stay away from fried or high fat foods too. They tend to run thru a little more quickly.
Please feel free to ask any and all questions you may have. Also, we want to hear what's going on with you...
You can definitely up your intake of imodium and if that doesn't help get an Rx of lomitil. Personally I found that imodium did nothing for me but lomitil worked wonders. As a last resort you can also get an Rx of codeine. That will really slow things down but I don't think you will have to resort to that. Keep a food journal and try to measure your transit times with specific foods. Eat more of the foods that are slower to travel through your system. Once you are stablilized you should be able to eat a rich and varied diet. Experimenting is key, I remember people telling me that applesauce and peanut butter were thickening foods but they both just shot through me. I did better with rice and oatmeal. You're going to have to play detective and remember, because of your hydration challenges, to get plenty of salty foods.
Oh, and many many many people have said that the Metamucil wafers work much better at thickening than the powder.
I hope I can answer your questions for you.
Loperamide - I take it first thing in the morning. The docs told me to take it about 20 minutes before meals so that it has a chance to "work" before the food hits your system. If you find you have stomach upset, just eat a couple of crackers til you get used to taking it. I have been taking it since I had my surgery in 1984. I've tried Lomotil but it made my stomach hurt a lot. It worked well, but I could not tolerate it. I have not had any problems with the Imodium tho.
As far as how many times I empty - well, that depends on how much I have eaten. Most days 4-5 times or so... but I have been eating quite a bit trying to gain weight. (That's a long story.) Again, if I decide I really want fried foods, or something that I know will speed up my output, I eat it. Sometimes I will take the extra Imodium when I know I will be eating those foods.
I go out daily - I work part time now at Indiana University. I worked full time before and after my ileostomy surgery from 1981 thru 2001. I only started working part time in 2001 due to family issues. I don't have a "set" work schedule but I usually work Mon thru Fri, 7 a.m. - 1 or 2 p.m. Off weekends. We are also in the middle of building a new home and I have been really busy with that as well. We are doing a lot of the work ourselves and subbing the rest out. My ostomy does not dictate where or when I go out. My husband has a motorcycle and we love taking bike rides too.
Have you started taking Imodium? How many and when? What are you doing with your diet? What have you been eating? You know, another thing you could do to expand your diet and include fiber to thicken up things is to introduce some cooked veggies, like carrots, sweet potatoes, butternut squash. You may want to kind of mash them a bit if you have not tried eating them yet. Just for the first time to see how well you handle them. Baked potatoes? How about hydration?
Please feel free to ask any quesitons you want. That's what we are all here for and there are many others on here that have really good hints.
Do you know about the chat room here? On Tuesday evenings we "try" to get together around 8 p.m. I haven't been able to attend for a couple of weeks but will try to tomorrow night. Hope to see you there.
It was really nice that you could find your way to the chat room. Yes, we all seem to have fun there. Time flies by tho and next thing ya know, I have to go to bed so I can be up at 5:30 a.m. I think I mentioned that we are building a new home so I imagine I won't be able to appear on here as often as I would like when our weather starts to get better. We have soooo much to get done.
Anyway, I totally understand about blockages. I've had several, hospitalized a few times right after my initial surgery but have been able to manage the partial blockages since then at home. I don't recommend it unless you know your body well enough to know when to give up and see medical assistance tho. Scar tissue (adhesions) have been a big problem for me as well. My GI doc and I have a really good "understanding". I always have some RX's here for pain, muscle relaxers just in case something happens outside of his office hours. I always tell him "don't make me go to the hospital -- there are Sick people there!" I'm always fearful of catching a bug on top of having an intestinal issue... the worst.
That's great! You could be a poster child for the Vitalyte company! I do believe they have the best formulated product on the market for electrolyte replacement. I am glad it's working for you.