article on IBD in today's New York Times

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined May 2007
Total Posts : 528
   Posted 2/26/2008 7:51 AM (GMT -6)   
hey Friends - I am about to reveal my anonymity here, but, whatever..... below is a link to a piece I wrote about my UC that is published in today's new york times. my hope is that this piece will raise visibility about UC and IBD in general. please circulate the story to as many people as you know so that together we can leverage this opportunity to bring IBD a bit more into the public sphere and make people less afraid to talk about it. just want to share in case any of you have an ostomy due to IBD. hopefully you'll enjoy my piece. -Loren

Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Cortfoam in AM, Rowasa in PM (is working wonders for me thus far)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!

Regular Member

Date Joined Jul 2007
Total Posts : 280
   Posted 2/26/2008 6:30 PM (GMT 0)   
Wow, NY Times--talk about exposure!! Good for you!

My son is a senior in high school and for an English project they created a "Hero" book in which small groups would pick a person who has dealt with a serious condition whether it be medical/emotional etc and overcame it. Most stories were about overcoming cancer or divorce. My son chose my story and at first I was hesitant because I didn't want people to know everything that I had been through. But the more I thought about it, our disease is made worse because people don't want to hear about bloody stools, colons, and the horrors that we have all had to face usually alone without the people closest to us being able to understand. And all the hurdles that we have had to overcome and still go on day to day without most people knowing we have a problem at all. A story like ours needed to be told.

Through many interviews with me and my family, my son's group had to re-write and edit several times because the teacher thought that many of the symptoms were too "uncomfortable" for readers. My son argued with her saying that this is why it's so important to include because it is real and if she thought it was "uncomfortable" imagine living with it everyday! One of his friends mother read the story and cried. Anyway the book is due to come out in a couple months and I can't wait to see how it turns out.

Originally diagnosed with CD in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying "Undetermined Colitis"
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 24, 2018 1:03 PM (GMT -6)
There are a total of 3,006,116 posts in 329,305 threads.
View Active Threads

Who's Online
This forum has 161824 registered members. Please welcome our newest member, wilsson4792.
295 Guest(s), 14 Registered Member(s) are currently online.  Details
alephnull, Steph6n, Michelejc, SoMuchFun, Mind body spirit, PeterDisAbelard., Boston221, zack36, Minnesota, InTheShop, Little Bear (LB), Normal59, Shayanv, iPoop