New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 3/3/2008 3:43 PM (GMT -7)   
Has anyone ever tried an ostomy belt like the Phoenix Ostomy Support System or anything like that?  I just had my surgery last monday and I am trying to adjust to this bag with my clothes and just in general.  I don't like "feeling" the weight of it hanging so I thought that I might be able to get this belt but I just don't understand how easy it would be to empty it because it is on sideways.  If you have used one and liked it then which one did you choose and if you used one and didn't like it, which one and why?
 
thanks
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


Stoma Girl
Regular Member


Date Joined Oct 2007
Total Posts : 55
   Posted 3/3/2008 4:55 PM (GMT -7)   
I went to my stoma nurse and she recommended wearing a stoma belt.. I ordered one and am waiting for it to arrive! Excited!! ^.^
x x x
Never Give Up, Never Surrender!
 
.. Stoma Girl ..
.. Ileostomy following Crohn's Disease, 2007 ..
.. Meds? Tried 'em all! ..
.. Currently on Paroxetine 20mg for depression ..
.. Time between diagnosis and operation - one year ..
.. But HAPPY! ..


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 3/3/2008 4:58 PM (GMT -7)   
stoma girl:
which one did you order?
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


Stoma Girl
Regular Member


Date Joined Oct 2007
Total Posts : 55
   Posted 3/3/2008 5:04 PM (GMT -7)   
Um to be honest I'm not sure LOL I went and asked for one and she said she'd order me a couple. They should arrive tomorrow so I'll post and say.. but I think they're by the Coloplast people.
x x x
Never Give Up, Never Surrender!
 
.. Stoma Girl ..
.. Ileostomy following Crohn's Disease, 2007 ..
.. Meds? Tried 'em all! ..
.. Currently on Paroxetine 20mg for depression ..
.. Time between diagnosis and operation - one year ..
.. But HAPPY! ..


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 3/3/2008 5:57 PM (GMT -7)   
these dont show under ur clothes?
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/3/2008 8:32 PM (GMT -7)   
i honestly don't understand the point of them
chili-once you have had the bag for awhile, and your stomach isn't tender, and your bag isn't filling up as fast, as it does that close after sugery, and you get back to wearing your regular clothes, it doesn't do that. At first i felt the same way, it was driving me crazy! i actually walked around with my hand on top of my shorts holding it up when i was alone, that looked crazy, lol. But it got much better after a while

chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 3/4/2008 5:04 AM (GMT -7)   
So do you guys put the bag inside your blue jeans?  I wear low rise blue jeans so I feel like the waistband of the blue jeans hits the pouch and/or the actual stoma in the wrong spot so I am either afraid that I am going to damage my stoma or bust the bag.  Also, I have a stoma nurse coming today so I hope that she can help me with setting it up so it works for me.  It also feels REALLy long so I have asked her about shorter ones and also the mini's (maybe).  I have to figure out a way to make this work and be comfortable so I am less conscience of it.  I know it is all new and I am sure that it will settle but at this point, I know I have not found a method that I am comfortable with.  I was thinking that the belt may be a good idea for me because I feel it "hang" as it fills and it just lays on my leg. 
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/4/2008 9:00 PM (GMT -7)   
i put mine inside my undies, then tuck the end back up to the side, so that thereis none hanging out

nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 3/4/2008 9:30 PM (GMT -7)   
Hey Chili123,
I just ordered my Nu-Hope ostomy belt today. I had to go back to the hospital where I had surgery 6 months ago and get fitted. I am so excited about having that support. I hope no one has had bad luck with one because I hope this helps with my buldge which just appeared recently. And I certainly don't want to think about any more surgery. I sound like Obama with all this hope. Ha?
Jennie

chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 3/5/2008 6:37 AM (GMT -7)   
The stoma nurse came yesterday and I am pretty excited. I was in a 2-piece convatec and she introduced me to a one piece and it is called Secure. If you can love a pouch..........I love this one (atleast so far). It has a wider bottom so the weight of the stool is more evenly distributed within the bag, it rolls up higher so it is substantially shorter, it seems to allow less air in it and the smell doesn't even seem to be as bad. Plus, I WAY prefer the one piece opposed to that big plastic ring that shows through my clothes and I really like being able to feel my stomach around the stoma opposed to that ring. I really felt like I had some foreign object attached to me. I figure that if I anticipated needing to switch pouch styles that I may opt to have a two piece every so often but for the day to day same thing.......I clearly prefer the one piece. She said that this style was new so fyi if you have not tried it. By the way, the rash that I have - she said is from too much product. She said "less is more" so not to use the adhesive remover and skin barrier. I liked everything she said because she simplified it so not so complicated. By the way, I still cannot figure out how to empty the pouch with a ostomy belt. Isnt' the pouch on sideways?
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 3/6/2008 5:46 PM (GMT -7)   
yah, what's the deal, who actually uses the pouch belts? wouldn't them being on sideways, cause all the liquid to pool around the stoma?
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 3/6/2008 5:47 PM (GMT -7)   
what brand is that "secure" pouch?
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 3/7/2008 5:26 AM (GMT -7)   
It is coloplast
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 4/1/2008 8:39 PM (GMT -7)   
chili123, are you sure the Coloplast brand you're talking about is not Sensura? They also have Assura. I have used Coloplast products a long time and never heard of Secure. Sensura is their newest line. Just curious. I always like to hear about the new products.

Mary
Ohio43

nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 4/2/2008 10:22 AM (GMT -7)   
Chili123
OK, this is a dumb question, but I assume you have to change the one piece bag several times a day, don't you? I have never used anything but a two piece ConvaTec system because that is what I had on when I came home from the hospital. I was thinking that the skin around the stoma might become irritated if you change the whole thing so much. I so much want my life to be easier. With summer coming soon here in Dixie, I don't know what to expect when I start sweating buckets every time I leave the house. I'm still waiting for the ostomy belt. It must be quite a job to "construct" one.
Jennie

chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 4/2/2008 5:32 PM (GMT -7)   
It is a one piece but a drainable. The nice thing about the one piece for me is that it doesn't have the stiff waifer around it so it is more flexible. I have not bought a belt or anything. I have somewhat adjusted but still struggling kinda with blue jeans.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 4/3/2008 5:51 AM (GMT -7)   
Jennie, for those of us with ileostomies, we use drainable bags, ie we open the tail end of the bag and drain the contents into the loo, leaving the actual bag intact. Closed end bags, while some do use them, aren't very economical for us.

Because colostomy output is so much thicker than ileo output, drainable bags are harder to use as it's harder to drain everything out, therefore closed end bags are much more convenient to just take off and pop a new one on.

Hope this clears up any confusion :)
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 11, 2017 2:35 AM (GMT -7)
There are a total of 2,903,885 posts in 318,695 threads.
View Active Threads


Who's Online
This forum has 158106 registered members. Please welcome our newest member, Pottybutt.
200 Guest(s), 3 Registered Member(s) are currently online.  Details
Turboz, testuser1234, irish4me