For women only-- jpouch pain

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tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 3/6/2008 1:17 PM (GMT -7)   
I am having my first real period since my second step jpouch formation and am having horrible rectal and vaginal pain. I usually have painful cramps and heaving bleeding but this is a sharper pain and in different areas. The surgeon's nurse said that it could be normal due to healing, but it's such a stabbing pain, I don't understand how it could relate and make the area where the pouch was formed hurt too.

I know I need to have a pap done by my gyn, but wanted to get these surgeries over with before I go and have more tests done. Guess I'm trying to stay out of dr offices for awhile. And I'm sure that my gyn has no experience with other who have had the jpouch.

Anyone else have this happen? I pray that this is not what I will have to look forward to every month or I will need heavy pain killers or call off work or both every month!

Would appreciate any info. (If you're a guy and read this, remember, I warned you! nono
Theresa

Originally diagnosed with CD in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying "Undetermined Colitis"
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/6/2008 4:46 PM (GMT -7)   
Theresa,
Do you think it could be nerve related from the surgery? It's amazing what disrupting nerves will do until they have a chance to calm down again.

Please let us know how things are going for you.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 3/6/2008 7:05 PM (GMT -7)   
Thanks Peggy the surgeon's nurse seems to think that it's part of the healing process, so I guess I'll have to hope that's true. It's so frustrating because they don't tell you what to expect and everytime you turn around, there is another pain or problem you have to wait out to go away. The rectal pain is subsiding and hopefully by tomorrow it will be better.

I continually worry about other problems arising and the physicians will not know enough about the jpouch and will keep referring me back to my surgeon. Don't get me wrong, my surgeon is great but the hospital he works at is about an hour away from my house and I don't want to have to go there for every little thing.

I'm trying so hard to stay positive, but I've felt like $&!* since June and really just want to feel normal. I look at other people I know that treat their bodies like crap by drinking and doing drugs and think how they have no idea how lucky they are and how they are wasting away their health and all I want is mine back. So I had my pity party today and cried like a baby but will go on tomorrow and put on my happy face and hope for the best.

Thanks for your concern
Theresa

Originally diagnosed with CD in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying "Undetermined Colitis"
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 3/6/2008 9:25 PM (GMT -7)   
HI Theresa!

I had a problem with mine last month..the pain was horrible! Then a week later this brown stuff came out and it kinda looked like my ostomy output. So I did what anyone would do I emailed my doctor because I was fearful of a fisture between my small intestine and my uteris. So I had an MRI, everything came out normal and everything stopped. It was probably blood that was old and stuck up there for the months that I didn't have my period. SORRY TO THE BOYS

Just saw the bill today that went to my insurance company and man that was one expensive period! This month's was much better but still more painful than normal.

Have you gotten your schedule for the end of the month yet????
Erica
Crohn's and Ostomy in 2004

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