You are so thoughtful.............thanks for your post. I bet your whole deal was so stessful. I tell ya, we all need to be thankful for every day that we feel good. That is awesome that they are going to re-connect you so soon. I asked the surgeon the day of my surgery to do step 1 and 2 that day, if possible. I guess it was a "no" because he said my colon was like tissue paper. Yours must have been really bad too because you ended up with all of those infections, right? I have my 2nd surgery in 6 mths to create the pouch and then then 3 mths after that I will be able to get rid of the stoma (all goes well).
So are you finally feeling better? That is so inspiring. I am guessing that having an infection like you have dealt with has really worn your body out so take it easy and allow your body to heal. I cannot tell you how fortunate I feel that I have not had complicatoins. I am not taking it for granted, though, because I have read about
so many people that have not been that fortunate.
I found a one piece bag that I really liked..........loved it. I thought that it was a perfect solution for me that made the whole stoma thing manageable but it leaked so you are lucky not to be dealing with leaking. My stoma nurse is coming back tomorrow so hopefully she can come up with a way to make a one piece work.
I will be praying for you also! WE can do it!!! All of us can and these struggles really make us stronger and more apprecative ..........I believe, at least.
- July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications: Predisone - 5mg (and tapering to zero)
Supplements: multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.