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Regular Member

Date Joined Jan 2008
Total Posts : 70
   Posted 3/9/2008 6:50 AM (GMT -6)   
Hi how r u doing?
read ur reply to my question and tanx. hope and pray ur feelin alot better.
so ur surgery is a 3 part surgery, i am glad that aswel as them giving me a stoma they have formed my pouch inside. the surgeon said they are lookin to reverse my stoma as soon as possible cos i've got a sore one. all depends how good my pouch has healed and how well i am. wen i got the infection they were worried the pouch collapsed, but luckily it hadn't.
went to c my stoma nurses on thursday and they said i was doing really well concidering, she said that she expected me to ring her as soon as i got home but i hadn't, i just got on with things.
the main thing for me is that my bag didn't leak and i can't thank god enough
u might think i'm mad but i believe that god got me thru this and it made me realize that noone could help me except him.
anyway take and let me know how ur doing, i'll b praying for u.
take care

Regular Member

Date Joined Jan 2007
Total Posts : 300
   Posted 3/9/2008 8:59 PM (GMT -6)   
You are so thoughtful.............thanks for your post. I bet your whole deal was so stessful. I tell ya, we all need to be thankful for every day that we feel good. That is awesome that they are going to re-connect you so soon. I asked the surgeon the day of my surgery to do step 1 and 2 that day, if possible. I guess it was a "no" because he said my colon was like tissue paper. Yours must have been really bad too because you ended up with all of those infections, right? I have my 2nd surgery in 6 mths to create the pouch and then then 3 mths after that I will be able to get rid of the stoma (all goes well).

So are you finally feeling better? That is so inspiring. I am guessing that having an infection like you have dealt with has really worn your body out so take it easy and allow your body to heal. I cannot tell you how fortunate I feel that I have not had complicatoins. I am not taking it for granted, though, because I have read about so many people that have not been that fortunate.

I found a one piece bag that I really liked..........loved it. I thought that it was a perfect solution for me that made the whole stoma thing manageable but it leaked so you are lucky not to be dealing with leaking. My stoma nurse is coming back tomorrow so hopefully she can come up with a way to make a one piece work.

I will be praying for you also! WE can do it!!! All of us can and these struggles really make us stronger and more apprecative ..........I believe, at least.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.

Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 3/9/2008 9:24 PM (GMT -6)   
I don't have a j poch but sammie I just wanted 2 tell u how strong and inspirational u are. I'm so proud and happy that u did well upon returning home. That was one of the scarier parts for me. Was tryn to handle this on my own. But like u, only God helped me thru it and he continues to do so. I hope u and ur sister are well.

25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting has been my Godsend...Thank you

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