Hi eva lou!
I guess u were an active member b4 I joined healingwell. Its nice 2 meet u! U say uv been following my story, so u know that I put off my surgery for over a year hoping the remicade or something would work.
However, after having the surgery I hope and pray that I didn't put it off too long, and so long that it would hinder my healing of my fistulas. Does ur doc want ur surgery 2 b permanent? I often kick myself bc I feel if I'd had the surgery when the doc first sugggested it, then I'd have it reversed by now.
Unfortunately, I didn't start humira until after my surgery. When the docs finally gave in2 the fact that the remicade wasnt doing a thing. I'd been asking them for it b4, but they wanted me 2 give remicade a chance. I'm praying that the humira will help, but I can't find much literature at all on the subject.
If its something ur thinking u may need, especially if the intent for the surgery is temporary, don't put it off for too long. My doc told me that had I waited much longer I would have lost my rectum and therefore needed a perm ileostomy n e way. If there's a chance for u to save other parts of ur body. Please give ALL of ur options serious consideration.
WELCOME BACK! :o)
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Worst year ever!
"For God has not given us the spirit of fear....."
Where does mine come from?!
Temp Ileostomy performed 1/29/08
Healingwell.com has been my Godsend...Thank you