dehydratoin picc line

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Jan625
Regular Member


Date Joined Feb 2008
Total Posts : 115
   Posted 3/9/2008 6:19 PM (GMT -7)   
Was at the hospital today for IVs for dehydration.I have to go two or three times a week, because of hight ileostomy output. I might have to have a PICC line put in.
 
This has been going on for a month and im getting scard.
I have tried so many things that I don't know what else to do.
 
Jan,

chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 3/9/2008 6:24 PM (GMT -7)   
How long have you had your ilestomy? I hope you start feeling better. Dehydration can be tough. I am new with the ilestomy but have you tried the SCD electrolyte drink that you can make? I use to get really dehydrated with UC because of "D" so I would make that drink and it really helped me.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


Jan625
Regular Member


Date Joined Feb 2008
Total Posts : 115
   Posted 3/9/2008 8:57 PM (GMT -7)   
I have had my ileostomy for ten weeks and it is perm. I really don,t know what to do. I'm so tired all the time and spend alot of time at the hospital getting IVs dehydration. Hope you have better luck than I do.

I had a PPIC line for over two weeks when I was in the hospital in Dec.07 and hate to think of haveing another one. It took one and a half hours just to put it in.

The ileostomy saved my life for now, as I had small bowl blockage from scar tissue. I have had alot of sergery in the past six months that shouldn't have turned out like this.

Thanks, Jan,

Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 3/10/2008 11:02 AM (GMT -7)   

Hi Jan:

As you know from previous posts I have a PICC line that I use just for hydration purposes.(one liter a day). I have had 3 lines over the past 9 months. It's easier to put in a replacement PICC line than the original line. Prior to this I was getting an angiocath each week in order to get the fluids. My arms got totally scarred up and are still healing from all the "sticks". Prior to the angiocaths I was in the ER every other week with severe dehydration.

My thinking was to treat the symptoms, dehydration, and then try and treat the cause. I have felt much, much better since I have been adequately hydrated. I have returned to work, I have travelled to the islands and I have felt much stronger overall.

I know the PICC line is not a permanent solution but I believe it is buying me time to try and find the ultimate answer. It sure beats feeling terrible and going to the ER.

I have other issues than most, I have had 2/3 of my pancreas removed, etc. and I have never suffered from UC or Crohns, but I think all of us ostomates have had difficulties, in varying degrees, with dehydration.

I am looking into the Sandostatin shot and other alternatives and I will keep you posted. I hope you feel better soon.

Richard

 

 


Jan625
Regular Member


Date Joined Feb 2008
Total Posts : 115
   Posted 3/10/2008 12:19 PM (GMT -7)   
Rihard do you do your IVs at home? Who takes care of the pick line? I think that is what I will end up with.

I have been going to the er two times a week for IVs and they are having a hard time finding a vane to put the needle in. I'm so tired of all af this.

This been going on so long that I don't think I will ever get better. It has been so hard on Bob. He has been great threw all of this.

I did not suffer from uc or chrons either. I will e-mail and tell you my story.

Thanks Jan,

RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 3/10/2008 4:26 PM (GMT -7)   
Hi,
 
I'm so sorry to hear of all the trouble ur going through.  I'm know it's frustrating.  I was in your shoes not to long ago.  I had a picc line for 4 months and how it worked was I had a nurse come once a week to change the dressing and everynight I was on a 12 hour TPN (nutrition).  I was also really dehydrated and I pushed myself to drink lots and lots of water.  My output is very high so it's very hard for me to keep hydrated.  I have been picc free for almost 4 months now and feel great.  I was told to increase the salt on my food because salt makes u thirsty where ur forced to drink a lot.  Also I take zone protein bars 3 times a day and one carton of muscle milk a day for protein purposes. I currently drink about 8-10 bottles of water a day not including sodas, tea, coffe..etc.  I truely wish u luck and hope everything works out.  I know it's a struggle but we have to push ourselves to not let it take control of us.
 
Let us know how things work out
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"

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