As you know from previous posts I have a PICC line that I use just for hydration purposes.(one liter a day). I have had 3 lines over the past 9 months. It's easier to put in a replacement PICC line than the original line. Prior to this I was getting an angiocath each week in order to get the fluids. My arms got totally scarred up and are still healing from all the "sticks". Prior to the angiocaths I was in the ER every other week with severe dehydration.
My thinking was to treat the symptoms, dehydration, and then try and treat the cause. I have felt much, much better since I have been adequately hydrated. I have returned to work, I have travelled to the islands and I have felt much stronger overall.
I know the PICC line is not a permanent solution but I believe it is buying me time to try and find the ultimate answer. It sure beats feeling terrible and going to the ER.
I have other issues than most, I have had 2/3 of my pancreas removed, etc. and I have never suffered from UC or Crohns, but I think all of us ostomates have had difficulties, in varying degrees, with dehydration.
I am looking into the Sandostatin shot and other alternatives and I will keep you posted. I hope you feel better soon.