J-Pouch or reconection ??? whats are the risks ???

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Clo Bo
New Member

Date Joined Mar 2008
Total Posts : 5
   Posted 3/10/2008 11:29 PM (GMT -6)   

I was diagnosed in January 07 with ulcerative colitis; I only had 1 major flare up in September 07 up which landed me in the hospital and in emergency surgery to have my colon removed and an illiostomy formed. I am 5 months post op and am now considering the reconnection operation. I have 15cm of colon left and it is still giving me trouble (leaking mucus and bleeding). At 1st I was fine with what the this next surgery entailed, thinking I would just go back to normal. But im staring to hear that this operation is very risky. I have heard you can become incontinent, you can loose feeling down there and can even effect your ability to have children, not to mention the pain and the recovery time. Now I don’t know what to think. Should I do it and take the risk? I am only 21 and am planning to have children and get married; the thought of going through IVF of having to wear nappies scares the crap out of me. I would be very grateful if anyone who has gone through with this surgery would like to share there experience with me. I am wrought with anxiety and need to know the truth.

                Thank *CloBo*

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 3/11/2008 8:08 AM (GMT -6)   
Most of us who have had jpouch surgery are very happy, the ratings are 95% satisfaction. Count me as one of them. Just as with any other surgery there are risks of complications. No one can promise you a perfect outcome. I chose to go ahead with it knowing that if it didn't work out I could resort to a permanent ostomy. It's been 7 years since surgery and I couldn't be happier with the jpouch. I encourage you to visit www.j-pouch.org for more information.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Regular Member

Date Joined Jul 2007
Total Posts : 280
   Posted 3/11/2008 11:06 AM (GMT -6)   
I had problems with the remaining rectum until this 2nd surgery, I had painful spasms because the rectum left still was inflamed with UC. I still have the discharge and that's normal and will have the final surgery on April 14th. Was your surgery done lapro or open? Are they talking about 2 steps or 3? Each surgery has risks, but I too have to try and if it doesn't work out, I'll just go back to the permanent ileostomy. I would also suggest going to jpouch-there is a wealth of info and support there.

Originally diagnosed with CD in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying "Undetermined Colitis"
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008

Regular Member

Date Joined Feb 2006
Total Posts : 140
   Posted 3/11/2008 9:15 PM (GMT -6)   

I had an my reversal 3 months after surgery. I opted for the surgery because i'm young as well and wanted to dress nice and look nice and not have to worry about the bag. I did great!!! The recovery was a couple of months but well worth it. As in all surgeries they're risky it's just like playing the lottery you either have it good or you don't. They also told me my pregnancy rate would go down 20%. So we did insemination and ended up getting pregnant from the first try with triplets. I lost them though due to an obstruction that landed me in the hospital i delivered early they didn't make it and i have emergency surgery they took out more intestine and ended up with an ileostomy again. Now I'm trying to have a reversal but we don't think it's possible this time but still working on it. With the reversal u have to do kigle exercises to strengthen ur rectal muscles so u don't have accidents. You're in the bathroom more frequantly but it's a way of life just like everything else. It's a matter of getting used to. So, if it doesn't work out then you live with an ileostomy right? Good luck and I hope this helps some
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"

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