Mushrooms and ileostomy

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Regular Member

Date Joined Mar 2005
Total Posts : 62
   Posted 3/12/2008 1:49 PM (GMT -6)   
Hi everyone,
Just a quick question, when I had my ileostomy surgery they said no mushrooms!!  Why?
I eat everything else, lettuce, tomatoes, black olives.  But they said avoid mushrooms.  If I chew them well I don't understand how they can be harmful.  Unless they swell and thats why they say no muchrooms. 
Do any of you eat them?
Blue 85
Dx: with Crohns in 10-2003 then changed to Ulcerative Colitis 1-2007
Proctocolectomy with Ileostomy June 19th 2007 - Doing great.
Prednisone 60 mg (currently tapering by 10 a week until zero), 6MP 125 mg po qd, Pentasa 500 mg 3 po tid, Calcium 400 mg with D tid, Iron po tid, Vit C po tid, Tylenol #3 prn, Multivitamin, Remicade - Quit working, Asacol, Colozal, Abatacept Study

Regular Member

Date Joined Feb 2007
Total Posts : 420
   Posted 3/12/2008 4:23 PM (GMT -6)   
Oh, I didn't know anything about no mushroom. I eat them all the time, in fact, I had some at lunch. So far, I haven't had any issues!
If at first you do not succeed, then skydiving is surely not meant for you.
Jo - UC, total colectomy,ileosotmy on August 24, 2008.

Stoma Girl
Regular Member

Date Joined Oct 2007
Total Posts : 55
   Posted 3/12/2008 5:13 PM (GMT -6)   


They said that to me, because unless you chew them really thoroughly they can cause blockages as they don't break down at all.. Once I was changing my pouch and some that I'd eaten earlier started coming through and I had to actually pull them out as they were being tricky. So if you chew them enough they're fine but otherwise they can make problems! Hope that helps :)


Mary x x

Never Give Up, Never Surrender!
.. Stoma Girl ..
.. Ileostomy following Crohn's Disease, 2007 ..
.. Meds? Tried 'em all! ..
.. Currently on Paroxetine 20mg for depression ..
.. Time between diagnosis and operation - one year ..
.. But HAPPY! ..

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 3/12/2008 5:38 PM (GMT -6)   
Speaking of mushrooms, I have had my share of problems with them in the past. It took me a while to figure it out, but here's what I've concluded: I used to eat a lot of pizza. And we'd always have leftovers that I'd warm back up in the oven. WELL, that extra "warming up" just dried out the 'shrooms and made them extremely hard to digest for me. OH what a horrible gut ache. So no more 'shrooms on pizzas for me!

I agree with Mary --- be very careful with them, esp the more fiberous ones. The regular canned mushrooms aren't too bad, nor are the white button mushrooms although the stems can be worse than the caps. I like to use mushrooms to flavor stuff and find myself chopping them very fine, almost like mincing them. Never can be too careful when you KNOW they can cause a problem.

Some folks don't have any problems with them at all ----- I'm soooo jealous cuz I love 'em!!!
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Regular Member

Date Joined Feb 2006
Total Posts : 140
   Posted 3/12/2008 8:31 PM (GMT -6)   
I've never had problems with them thank God. Then again, I wasn't told anything about not eating them and yesterday I bought 2 packs of the white button I'm scared!!!! I also eat salad literally every single day and no problems except that they go through me quicker but I love salad and never see myself not having it. Good luck
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 3/12/2008 8:55 PM (GMT -6)   
Congrats on salads -- I can eat them too, cautiously. Love them as well. Keep eating if they don't bother you. Button 'shrooms are less fibery than others --- ENJOY!!!!!
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 3/12/2008 9:50 PM (GMT -6)   
i eat mushrooms, and haven't had any trouble, they did give me some awful gas though!
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