I think Sue made an excellent point -- keep things in perspective. Most of the folks that already have ostomies and are doing well and don't have any problems or questions are probably not visiting this Ostomies forum. So you are hearing "stuff" from those of us that are having or have had appliance issues or surgical issues or even food issues, any questions at all. All very good topics that someone else here most likely has an opinion or answer to.
Yeh, I agree that this ostomy I have now is truly a blessing and I would not even think about
going back to my life PRE ostomy. I had CD, and had several surgeries for resections and even a temp ileo. And that in itself can cause adhesions. Everyone who has any type of surgery, as I understand it, is susceptible to adhesions. It is just scar tissue. Sometimes, scar tissue can cause problems. There are no explanations for who, why, where.... I'm sure if those of us that have had a "kink" in our intestine or problems with blockages due to scar tissue could change our life or diet or whatever to avoid it, we sure would. We are just the lucky chosen few!!!
I have met so many nice people on this forum who have so many good questions. If anything I have experienced in my past can help anyone else, I want to share --- just an awareness thing. That is not saying that it will happen to you. I didn't have such a wonderful group or knowledge base to pull from when I experienced some really scarey things for me right after I had ostomy surgery. I had to call my surgeon's office, TRY to get a return call from a nurse to get my answers. You all know about
that. How nice this website would have been for me then. And, I didn't take the initiative to do much research about
an ileostomy or anything related to the surgery or appliances prior to my permenant ileo surgery. At that time, I was young and guess that it wouldn't matter if I knew about
it or not - I was still eventually going to have to have it done permanently. I guess I just was being an ostrich with my head stuck in the sand!! Didn't work at all for me! lol
Sorry for rambling. I just hope that I haven't scared anyone needlessly. That certainly has never been my intention.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery