Finally changed my bag on my own!

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Regular Member

Date Joined Sep 2007
Total Posts : 113
   Posted 3/22/2008 4:04 PM (GMT -6)   
So after being in the hospital for a couple of weeks I finally had to change my bag last night here at home. I had meant to do it yesterday (it was getting itchy and gross looking) but I decided to put if off one more day. Partly because I thought it would hold, and partly because I am still a little freaked out by my stoma and changing the bag. Anyway, the bag started to leak at 6am and so I was forced to do it. My fiance helped and we managed to get it done in 15 minutes or so. No biggie. Just like that. The bag works fine (so far) and I feel fine (knock on wood). So hooray I did it! Hehe, just felt like sharing.
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February:Complete!)

Prednisone (10mg taper)

Veteran Member

Date Joined Nov 2003
Total Posts : 518
   Posted 3/22/2008 4:54 PM (GMT -6)   
Good for you!! It is rather freaky the first time. I remember being so grossed out if I accidentally touched my stoma--slimy! Very cool about your fiance helping, too.

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 3/22/2008 5:02 PM (GMT -6)   
Congrats! That really is a big step. I got all shaky the first few times. I'd say that you did it like a pro! Keep it up. Glad to hear that you are doing so well.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 3/22/2008 10:17 PM (GMT -6)   
it will just get easier each time

Regular Member

Date Joined Oct 2007
Total Posts : 55
   Posted 3/22/2008 11:38 PM (GMT -6)   
congrats on your bag change! it's so weird, but there is nothing like a leak to make the process easier. i did lots of bag changes, but it wasn't until i got a leak that i got alright with doing them. Big-time congratulations!
diagnosed Endometriosis 2001
first surgery 2003 - lesions found in rectum
7 major procedures in 2007 including 10-hour endometriosis dissection, ileostomy, ilestomy takedown, colostomy
No longer taking testosterone, codeine, vicodin, xanax, or receiving acupuncture 2-3 times a week
Loving life and re-entering "the world"
still taking the occasional valium :)

Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 3/23/2008 1:11 PM (GMT -6)   
congratulations! when i first started changing my own bag, i thought i would pass out! lol now its no big deal, as a matter of fact i just got out of a shower, rinsing my stoma off feels so liberating ( no bag) and then changed it, and with these moldable flanges, theres no cutting so they go on like a piece of cake...not literally but u know what i mean lol
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting has been my Godsend...Thank you

Regular Member

Date Joined Aug 2007
Total Posts : 254
   Posted 3/24/2008 9:56 AM (GMT -6)   
Dear Carlow:

Well Done! It definately gives an ostomate a sense of empowerment when you can take care of your own changes. Helps us to feel more "normal" (whatever that is!) Congratulations!

Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 

Regular Member

Date Joined Sep 2007
Total Posts : 113
   Posted 3/24/2008 6:00 PM (GMT -6)   
Hey guys! Thanks for all your encouragement and praise! I'm sure I'll still feel a little wonky doing the next few changes, but I'll manage. I'm not scheduled yet, but I am having a reversal performed eventually. I'm glad that I had this experience though, knowing that if anything goes wrong with the reversal I already know how life with a bag will be like. Now if I could just get this infected j/p drain out of my butt... :p. It literally is a pain in the you know what!
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February:Complete!)

Prednisone (10mg taper)

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