I am having surgery in June subtotal colectomy

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mcmom1234
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 3/22/2008 7:39 PM (GMT -7)   
After 47 years of suffering with what doctors have always called IBS, my doctor has found that my large bowel no longer works. My surgery for Subtotal Colectomy has been set up for June. I have been reading all of your posts and can not believe there are others who suffer from the same thing. I also been low on most of vitamins and minerals for the last two years. No amount of pills can correct this problem. Has anyone else had this problem with vitamins or is it just me?

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/23/2008 8:05 AM (GMT -7)   
mcmom,

Welcome to posting at HW.com! Do you have severe diarhea with your large bowel that no longer works? If you do, then that probably explain why your numbers on your vitamins and minerals are not very good. A diseased colon doesn't have the capability to absorb things as it should.

Hopefully someone else will come along and post also .... hang in there. Good to have you posting with us!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 3/23/2008 12:31 PM (GMT -7)   
I had a subtotal done back in September. I do have pernicious anemia and get B12 shots twice a month for that. I also take prescription vitamin D and folic acid.

Terri
 
_________________________________________________________________________________
Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Sub-Total colectomy in September 2007 for colonic inertia.
Son diagnosed with Crohn's at 17 (now 21). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.


SubColectomyHereICome
Regular Member


Date Joined Jan 2008
Total Posts : 56
   Posted 3/25/2008 5:02 PM (GMT -7)   
Hi mcmom1234, I too am scheduled to have a subtotal colectomy in June. I have severe constipation... I am very nervous about this surgery, but I know it's worth it! Best of luck to you... You are not alone!

mcmom1234
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 3/25/2008 7:40 PM (GMT -7)   
Thanks to all of you. I can not believe I even admitted to this problem in such a public way. Most people do not want to even hear about this problem. I have dealt with chronic and severe constipation for my entire life. For the 1ST 20 years of life the doctors always said I was too young to have this problem it must be in my mind or I was making the symptoms up for attention. After the age of 25 the thinking was the term IBS. The doctors where always confused when no medication including prep kits work. I was so happy when it was found that waste does no leave the small bowel in my body. I found a great local doctor that finally understands my problem are not a little belly ache.

HisWill
Regular Member


Date Joined Mar 2008
Total Posts : 43
   Posted 3/30/2008 6:32 PM (GMT -7)   
Hi, I am having a subtotal colectomy/ileostomy this Thurs, April 3. Mine is for chronic and severe constipation too! You are the first two people that I have found who is having this or has had it for constipation. I am not saying that there are no others, just that you are the only ones that I have found so far. I have an autoimmune illness called scleroderma and several other overlapping autoimmune illnesses. I take narcotic pain meds which causes constipation, plus because of scleroderma, my nerve endings and muscles do not work so I have very poor motility. My ileostomy will be permanent. I am curious, mcmom and subtotalcolectomyHereI come, if yours will be permanent too and also what led you to the chronic constipation. Please let me know, if you feel comfortable sharing this with me and others. Thank you very much, HisWill

spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 3/30/2008 9:33 PM (GMT -7)   
Hi what subtotal colectomy means?
-IBS induced by NSAID
-IBS-A,C with meteorism(trapped gas) and pubic burning-
 


mcmom1234
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 3/31/2008 5:41 AM (GMT -7)   
With Subtotal Colectomy the Surgeon tries to remove most of the diseased large Colon. Then the hope is the small bowel will be attached to the rectum. If everything goes right there should be no appliance needed. They are trying to do this with Minimally Invasive surgery with a scope. There should be Three small scars rather than having a long 12" scar. I say If all goes well because my body never does what is it is suppose to.

mcmom1234
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 3/31/2008 7:08 AM (GMT -7)   
I hope you "His Will" will find the peace with your surgery. My surgery should not be permanent but at this point the pain is so bad they could remove all of colon and I would not care. You asked how I got to the Chronic Constipation. The true name of my condition is Colonic Inertia meaning nothing moves in bowels. I use the term Chronic Constipation because it has the tendency to end well meaning conversations from people about how fiber or ..worked for them. I have always had something that baffles doctors. I eat but after 4-8 days my Bowels go into spasms that are Debilitating and it always feels likes rocks moving inside me. This lasts until a bowel movement and then I am normal again. I have tried everything fiber, every enema, suppository, laxative, Zelnorm, and Mirlax 3 cups a day for a year with no relief. I have seen doctors since the beginning of my life with the belief if you saw a doctor long enough they would help eventually. My mistake!! My family doctor told me to take a break from doctors and start using a hot water bottle enemas once a week and though not pleasant it has kept me alive. Being home and suffering I started making lists of the doctors I had seen with specialty, name address, phone number and brief information on test performed and results. By the time I saw my current doctor my list was four pages long and documented my history and not just what the doctor saw today. I noticed many doctors would say the same thing, IBS, stress... but a couple doctors from a teaching hospital thought differently. I started looking for doctors from this school because they thought outside the box. It has been found through many test that the muscles in the large colon do not work and food sits there until removed. Hope this helps!!

spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 3/31/2008 9:47 AM (GMT -7)   
Thanks for the explanation.

For me,i have to go promptly because everytime motlity stop i have gas build up giving me the quality of life of colonic inertia patients.
-IBS induced by NSAID
-IBS-A,C with meteorism(trapped gas) and pubic burning-
 


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 3/31/2008 10:07 AM (GMT -7)   

mcmom-

I too had colonic inertia. It took eight years to diagnose. There are a lot more of us on this site than you might think. Most of us post under the total colectomy message. I am nine weeks post-op from a total colectomy. I am starting to get my life back. I had a lot of complications with my surgery,  but not everyone does....i was just one of the few. I am finally going back to work next week. I can go to the bathroom for the first time on over eight years and I have no regrets about my surgery. It was the best decision I have ever made and I thank my new GI for the in dept testing he did and the amazing surgeon.

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