Did you have any of your diseased colon removed at the time you received your temp. ileo? *if you don't mind my asking? How much CD do you have and where? I'm a nosey sort, aren't I?!
And, YES, you hit the nail on the head..... "what don't kill ya will make ya stronger!!!" My momma always said that one!
I too, had a temp ileostomy I did not expect!! I waited my 3 months and had it reversed. You have to pay attention to your body and make sure you let your Dr. know of any problems you experience after the reversal. You may have to find the right medication(s) that will help your body with what is going on. The best thing to say is as long as your disease is active, you have to stay on top of your treatment.
My problems were similar to yours, and I eventually had another ileostomy (like you, I knew what it was like to have one) and went on to do just as much, if not more with my life. Keep up the positive attitude and educate yourself as much as you can. This site is great to find out all the little things you weren't sure about!!
I hope all goes well on the 4th and you'll be home before you know it:)
thank you to you all for your advice and your own experiences im sure they will benefit me.
im not on any medication at the moment for the active part. it isnt causing me any pain but surely they should have me on something so it doenst get worse? i was on pred for such a long time at 40mg most of that time and i put a hell of alot of weight on! i came of the pred 3 months after my surgery and havent been on anything since. the steroids were keeping the bit in my rectum at bay so thats why i was able to have my first surgery but it came back as soon as i came of them. that bit has never really caused me any trouble but you would have thought they wouldv'e put me on something to kep it at bay? will this effect my chances of success in surgery?
thank you all for your support and i will let you all know how it goes.
Post Edited (angel88) : 4/1/2008 3:46:06 AM (GMT-6)