Well, finally decided that my "good fight" of trying to hold on to a sick colon for 37 years is over. The final straw was having none of the meds working, and, being diagnosed at Mayo Clinic last week with CMV colitis in addition to my currently moderately to severely flaring UC. CMV colitis means that my immune system is pretty compromised. Not worth dying of something else when there are surgical alternatives out there.
Surgery scares the bajeebas out of me, but, the support on this website is fantastic! I believe that the end result will be great. Having 2 stage done at Mayo Clinic Rochester, first stage scheduled for May 14. Dr. John Pemberton will be the man to get it done. Have to wait a few weeks for the Humira to get out of my body.
Thanks for all the supportive posts from those who have had J-pouch surgery and have been able to successfully "move on" with their lives. They were very helpful in my accepting, at this point, what is inevitable.
Imuran 225 mg, prednisone 12.5 mg. (tapering), stopped Humira, Valcyte 450 mg. 2X2/day (CMV Colitis diagnosed Mayo Clinic + UC)