DONE Fighting the Good Fight-J-pouch Surgery Scheduled

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New Member

Date Joined Mar 2008
Total Posts : 6
   Posted 3/31/2008 3:36 PM (GMT -6)   
Well, finally decided that my "good fight" of trying to hold on to a sick colon for 37 years is over.  The final straw was having none of the meds working, and, being diagnosed at Mayo Clinic last week with CMV colitis in addition to my currently moderately to severely flaring UC.  CMV colitis means that my immune system is pretty compromised.  Not worth dying of something else when there are surgical alternatives out there.
Surgery scares the bajeebas out of me, but, the support on this website is fantastic!  I believe that the end result will be great.  Having 2 stage done at Mayo Clinic Rochester, first stage scheduled for May 14.  Dr. John Pemberton will be the man to get it done.  Have to wait a few weeks for the Humira to get out of my body. 
Thanks for all the supportive posts from those who have had J-pouch surgery and have been able to successfully "move on" with their lives.  They were very helpful in my accepting, at this point, what is inevitable.

Imuran 225 mg, prednisone 12.5 mg. (tapering), stopped Humira, Valcyte 450 mg. 2X2/day (CMV Colitis diagnosed Mayo Clinic + UC)

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 3/31/2008 3:51 PM (GMT -6)   
I'm sorry that you have to give up the fight, but you are correct about not dying of something else (compromised immune system), esp. with the alternatives available to you.

Surgery is scary no matter who you are... just have a positive attitude going into it and you will have our support before, during and after if you want it. Keep in touch with the jpouch site too. Please keep us updated.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Regular Member

Date Joined Jan 2007
Total Posts : 300
   Posted 3/31/2008 3:52 PM (GMT -6)   
Congratulations on your decision.  You will be on the road to recovery before you know it.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 3/31/2008 3:53 PM (GMT -6)   
Good luck John. If your results are like mine you will wonder why you got all worked up over making the decision to have surgery! I encourage you to visit for more information on recovery.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 3/31/2008 7:32 PM (GMT -6)   
john dont look at it as giving up the fight...look at it as fighting back even harder...ur doing what it takes to feel good again...i'm sure everything will go well! This site is amazing isnt it? helped me thru some really horrible times
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting has been my Godsend...Thank you

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