About a month away from my surgery date...

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78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 4/4/2008 6:54 PM (GMT -7)   
May I request some helpful information, please?
 
On May 6th I will be having my colon removed, an ostomy bag for several months while the J-pouch fabrication heals and then another surgery to remove the ostomy bag and connect my ends for internal waste handling.
 
I would like to know how long before:
Able to lift things?  *I will be boarding my horse, but I'd like an idea of how long that may have to be.  I am figuring on 5-8wks.
Shower?  Bath?  Basin and washcloth?  Will I be able to lift my arms to style my hair?
Special clothing?  Mother thinks I will need dresses that button, zip or snap in front and will be unable to wear anything around my waist.
Supplies?  Where do I get the supplies I will need for doing the bag-thing and what should I have on hand?
 
Thank you for any help in preparing me for this change.
78Silver


I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
UC is pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/4/2008 7:35 PM (GMT -7)   

78Silver

I am 9 weeks out from a proctocolectomy(colon/rectal removal) with an end ileostomy and I have to say that boarding your horse is very smart!  I know our surgeries are a little different, but I am still not able to do too much with my horse.  I have had many surgeries prior to this one and had a loop ileostomy for 6 years or so before this, and was able to do more around the barn sooner than this one.  So basically, you need to listen to YOUR body, and be careful.

I put a chair in the bathroom and did whatever I needed sitting.  Showering wasn't a problem for me and when I got out and was tired, I just sat down.  As far as clothing goes, sweatpants/flannel lounge pants work great.  I didn't mind the elastic(it wasn't tight) on my stomach area and I am sure a dress would do the same.  I started wearing jeans after my staples were removed(that usually makes things feel better!!)
 
Your ET nurse will set you up with the supplies you'll need for your ostomy before you leave the hospital and send you home with a few changes worth until you get your first order.  There are several companies out there that you can order from and it may depend on what insurance you have.
 
You have a month before your surgery...remember to ask as many questions as you can find.  There are some great posts on here with things to remember when you go to the hospital...they were very helpful for me and made my stay more comfortable.  Don't worry about having an ostomy.  You'll find that you can adjust to it easier than you expect and yours will only be temporary!
 
OHIO76
 
 

Esky girl
New Member


Date Joined Apr 2008
Total Posts : 1
   Posted 4/4/2008 11:43 PM (GMT -7)   
good luck on your surgery. Most important thisg is to becarefu. Do NOT lift more than your docor says or you may get a peristomal hernia. I wore pajama bottoms on my stomach fot 6 weeks around the house and elastic waist pants when going outside for about 3 weeks.
After your staples are out you will feel alot better and depending on your age you should see your strength return after 4 weeks. hope this helps and good luck to you

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 4/5/2008 12:05 PM (GMT -7)   
78SilvAnniv said...
Special clothing?  Mother thinks I will need dresses that button, zip or snap in front and will be unable to wear anything around my waist.
Until you heal after surgery, loose clothing is what you'll want. As others have said, trackpants are great :)  Dresses will do just fine too.
 
After you've healed you can go back to your jeans and things :)  When I was a teenager I wore the tightest jeans I could find and no one could ever see my bag when I was wearing them :)
 
78SilvAnniv also said...
Shower?  Bath?  Basin and washcloth?  Will I be able to lift my arms to style my hair?
 
You should be able to, just use a chair in the shower if you get tired. 
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/5/2008 5:37 PM (GMT -7)   
i was told to wait six weeks to wait before lifting over 20lbs.
as for clothes, you will want things that are loose at first. I bought some long gowns, for the hospital, and i actually bought size 2x and i wear a medium. I did that so it would be really really loose, and it was helpful. then when i got home, it was summer, so i wore like cotton shorts, but i wore them at least two sizes too big. After my stomach felt better though, i was back in regular clothes.
You should be able to lift your arms, it might tire you out at first, but i don't think that stomach surgery would impede the use of your arms any.

78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 4/8/2008 9:02 PM (GMT -7)   
I had my last intravenous Remicade infusion today. My GI Dr came in to see me and was very pleased with my upbeat attitude. I really am looking forward to a change, but it does sound like it will be difficult getting used to the ostomy-bag. Dr said by the time I get used to it, I will be ready for the reversal surgery which will return waste removal to an internal thing again.

I asked if I could halt my pills (GI-tract pills and the chemo) and she said no. I must take them up to the day before surgery. After the colon is gone, I won't need to take them at all. I will be down to one Rx of a daily pain pill for managing my hip and Hubby will be the one eating pills for breakfast, not me! *cackles gleefully*

I was suffering from severe afternoon and evening nausea and she Rx'd me phenergen. Wow. That stuff puts me out like a light for 10hrs at a time! I warned Hubby this evening that I took one and if he needed me to run to the store for anything, I had to do it right then before it kicked in and he said no. THEN, an hour later he asks me to run to Wally-world for him and I had to remind him I took one of the Phens. I offered to go in the store if he would drive, but he didn't really want to drive so he'll do without whatever it washe wanted until tomorrow.

I will see my GI Dr one last time, after the surgeries are over so she can 'close my case' I guess, and see how I have adjusted and if I am doing well. That will be in late Fall.
Nervous about the surgery, but actually getting excited, too.
WHERE is the ostomy bag/opening located on the abdomen? Is there a choice as to where it goes?
h
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
UC is pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/9/2008 3:09 PM (GMT -7)   
i LOVE phenogren, lol. Its your friend!
anyway, if you have an ileo it's usually on your right side. Mine is a little below and to the right of my belly button. The ET nurse will help you find a placement spot that is good for you

78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 4/9/2008 8:24 PM (GMT -7)   
Whew! Thanks, I like to sleep on my left side with my tummy against a pillow.
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
UC is pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/10/2008 7:40 PM (GMT -7)   
after a while you will be able to sleep any way you want. I sleep on my stomach now. But i do warn you, dont' try it at first, it won't feel good, lol.
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