I had my last intravenous Remicade infusion today. My GI Dr came in to see me and was very pleased with my upbeat attitude. I really am looking forward to a change, but it does sound like it will be difficult getting used to the ostomy-bag. Dr said by the time I get used to it, I will be ready for the reversal surgery which will return waste removal to an internal thing again.
I asked if I could halt my pills (GI-tract pills and the chemo) and she said no. I must take them up to the day before surgery. After the colon is gone, I won't need to take them at all. I will be down to one Rx of a daily pain pill for managing my hip and Hubby will be the one eating pills for breakfast, not me! *cackles gleefully*
I was suffering from severe afternoon and evening nausea and she Rx'd me phenergen. Wow. That stuff puts me out like a light for 10hrs at a time! I warned Hubby this evening that I took one and if he needed me to run to the store for anything, I had to do it right then before it kicked in and he said no. THEN, an hour later he asks me to run to Wally-world for him and I had to remind him I took one of the Phens. I offered to go in the store if he would drive, but he didn't really want to drive so he'll do without whatever it washe wanted until tomorrow.
I will see my GI Dr one last time, after the surgeries are over so she can 'close my case' I guess, and see how I have adjusted and if I am doing well. That will be in late Fall.
the surgery, but actually getting excited, too.
WHERE is the ostomy bag/
opening located on the abdomen? Is there a choice as to where it goes?
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
UC is pretty darn crappy, but if you can't laugh at yourself, you'll cry.
I'd much rather laugh.