Post Op subtotal collectomy/ileostomy

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Regular Member

Date Joined Mar 2008
Total Posts : 43
   Posted 4/9/2008 8:13 AM (GMT -6)   
Hello, I had my subtotal colectomy/ileostomy last Thurs, April 3. I was at the hosp for 2 nites and they sent me home because I had reached the gas, urinated, bowel movement..or liquid bowel movement. lol. Anyway, I was amazed at how everything went as well as it did. I had about 100 people praying for me and I really think that this is what helped me. My doc said she never had a surgery go as well as mine and never had a patient did so well with it. I was walking down the hall on the evening of my surgery. Since I have been home, I have had a few things that need ironed out..bag leakage, irritated skin around stoma and the need to change my meds. I take pain meds for my scleroderma that were long lasting. With the illeostomy, they go thru my system. .So I am going on a patch. Also, my depression med, Celexa needs to be changed to liquid. So all in all..things are going well for me, Thank God! Yes, it is painful, but the meds help and it is bearable, not anything more than I am already used to with scleroderma pain. Thanks for listening to my post op surgery. HisWill

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 4/9/2008 11:36 AM (GMT -6)   
Wow! That's great news! I'm so glad that your surgery went well and that you're already home. If you have any questions, please ask, and we'll do our best to help you through it.

Rejoicing with you!
:-) Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

Regular Member

Date Joined Jul 2007
Total Posts : 280
   Posted 4/9/2008 6:20 PM (GMT -6)   
That's great news that you are home already!! :-) :-) Try not to overdo it and take it easy, it is a big surgery and you don't want to do too much too fast!

Hope that all continues to go well for you!


Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 4/9/2008 7:36 PM (GMT -6)   
im so glad ur doing well!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting has been my Godsend...Thank you

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 4/9/2008 8:48 PM (GMT -6)   
Congratulations HisWill on a quick recovery!! I am so happy that you are doing well. Please stay in touch and let us know how you are doing.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Regular Member

Date Joined Mar 2008
Total Posts : 43
   Posted 4/14/2008 8:07 AM (GMT -6)   
Thank you all for your well wishes. It has been a pretty good week since my surgery. I have had a few challenges with my primary care doctor and my surgeon regarding my medications. They were passing the buck to each other. Neither one wanted to be responsible for writing me a script for break thru pain meds. I have been on pain meds for scleroderma for 8 yrs. However, I came home from the hosp with a 5 day script for break thru pain for the surgey. I ran out of those meds after 5 days. Also, the pain meds that i had been taking for scleroderma were time released and were not absorbed in my body and came out in my bag! lol. Which is not uncommon from what I read online. So there I was on a Sat evening at 8:30 pm without pain meds! This was only 3 days after my surgery. I called the doctor on call and he called in an emergency script for only 5 days for a liquid form of this med. My pharmacist is wonderful. He waited until the script came thru before he went home. The store closes at 9 pm. Anyway, after the 5 days, i needed a month supply of the med and this is where all the confusion came with my doctor. She decided she wanted me to go on the patch and the story gets even more complicated which I wont go into because the whole thing gives me a headache, lol and I dont want to lose my peace thinking about it all and getting upset again. I just wanted to say hello and let you know that I am coming along fine. I do have a deep pain inside around my incisions and deep in my gut. I dont know if I am doing too much or if this is normal. I have an appt with the stoma nurse today so maybe she can answer some questions about that. Take care everyone. HisWill
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