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brian T1
New Member

Date Joined Mar 2008
Total Posts : 17
   Posted 4/10/2008 9:22 AM (GMT -7)   
There was an post of the UC website by a person describing a bag as
"Who wants to have excrement coming out the front of them into a bag that has to be glued onto the skin & can therefore itch, leak, or break".
Two of my family have a bag and have a complete life. I find this a very insulting comment. Does anyone agree?
Dx mild pancolitis 2006
Mesalamine - Oral & Rectal
Vitamins & Supplements

Regular Member

Date Joined Feb 2007
Total Posts : 420
   Posted 4/10/2008 10:26 AM (GMT -7)   
All I can say is I Love my leaky, itchy bag of excrement - it saved my life, and I would be dead if I didn't have it.

So there.
If at first you do not succeed, then skydiving is surely not meant for you.
Jo - UC, total colectomy and ileostomy on August 24, 2008.

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 4/10/2008 11:16 AM (GMT -7)   
I am with you on that reply!!! Ditto.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 4/10/2008 11:31 AM (GMT -7)   
LOL! Jo - perfectly put :)
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Cortifoam, Aciphex, Forvia, and Pro-Bio, Calcium, Vitamin D
Co-Mod for the UC forum:  Keep HealingWell running smoothly:

Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 4/10/2008 2:52 PM (GMT -7)   
did they have one? could they really relate? i must admit, while jo put it perfectly, b4 i had my bag, i used to think those things...out of fear and ignorance...mayb they didnt know n e better?
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting has been my Godsend...Thank you

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 4/10/2008 5:47 PM (GMT -7)   
Before my ostomy ---> Sprinted to the bathroom 20+ times a day and took lots of medication mad

After my ostomy ----> Leisurely stroll to the bathroom, feel great, and off all medicine :-)
Do I love my ostomy? Heck yeah!! yeah
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 4/10/2008 7:35 PM (GMT -7)   
well i posted in that thread in the UC post but i will repeat what i said there
I NEVER want to go back to the "old fashioned" way of using the bathroom again, this is sooo much easier!

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 4/11/2008 5:55 AM (GMT -7)   

Springting to the bathroom is hard enough, but I need to add NO MORE ACCIDENTS and embarassement from having accidents!!!

I count this ileo as my 2nd one and I have to say I didn't really get along with the first one, but I never gave it a chance because it was "temporary", or so I thought!  I had it reversed before Christmas one year, and had my 2nd one done before April 1st!


Veteran Member

Date Joined Feb 2006
Total Posts : 629
   Posted 4/11/2008 8:00 PM (GMT -7)   
i wouldn't say the comment is insulting, the poster is just clueless/misinformed.

i much prefer emptying my bag in 2 painless minutes rather than sitting on the 'throne' for an hour to squeeze out one tiny turd, then having to lie down for 2 hours to recover from that, then getting trashed on dilaudid just to get to work. then coming home, popping more dilaudid; chasing it down with a bunch of booze and passing out just to wake up and do it again. what a moron, so poorly informed. if i would have known how good life would be, i wouldhave had this ileo 20 yrs ago

Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

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