pain after an ileostomy

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New Member

Date Joined Apr 2008
Total Posts : 2
   Posted 4/14/2008 1:35 AM (GMT -6)   
how long does it last (the pain) I had my surgery about 2 months ago and I still pain i tried to go back to work but I ended up hurting myself. so if anyone can give me a rough time line that would be great thank you.

Regular Member

Date Joined Mar 2008
Total Posts : 43
   Posted 4/14/2008 7:44 AM (GMT -6)   
Hi, I am sorry that I dont have an answer for your question but I was wondering the same thing too. I had my illeostomy 10 days ago and I have pain too. I dont find that unusual, HOWEVER, apparently, my surgeon does. I was sent home from the hospital with a 5 day script for pain meds. When the 5 days was up, I called my primary care doctor for a refill. She told me to call my surgeon because she wrote the script. So I called my surgeon and she said..NO, she wont fill it and it was my primary care doctor's responsibility. Plus, she said.."she shouldnt be in pain from the surgey anymore"! I was very upset that she said this! Five days after a subtotal collectomy/illeostomy and I shouldnt be in pain?? So when I hear that you are still in pain after 2 months, it makes me wonder just how long we will have pain. You mentioned that you hurt yourself. Did you hurt yourself regarding your surgery from doing to much too soon? The reason I ask is because I am still in pain and I was told to make sure I walk around the house but I am not sure just how much housework and chores I am able to do. I dont want to not do anything and sit around all day. But, it seems that when I am up and around doing light chores, I have this deep pain inside and I have to lay down. Anyway, sorry that I havent been of help to you, I just wanted to let you know that you are not alone and I was wondering the same thing.  I hope we get some input from from others. Thanks! HisWill

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 4/14/2008 12:20 PM (GMT -6)   

billyboy11-have you let your Dr or stoma nurse know?  where is the pain?  At the stoma or incision?  How long have you been back to work?  Do you do physical work or work at a desk?  There are a lot of things that can cause pain, but it should be subsiding, not getting worse, at your stage.  Definately check with your doctor...

HisWill-if you are only 10 days out, I wouldn't do chores around the house, yet...I know it feels silly to sit around the house, but your body still has to heal.  Didn't your doctor give a list of things you shouldn't do for a specific amount of time?  You probably should lift more than 15-20 pounds for a few more weeks.  As far as pain meds go, if it is from your surgery (what level of pain is it on a scale of 1-10), your surgeon that did it should refill, if you still have pain. 

I hope you both find help with your pain soon,

Westcoast Joe
Regular Member

Date Joined Apr 2005
Total Posts : 130
   Posted 4/14/2008 4:22 PM (GMT -6)   
Hey gang, I to have a lot of pain and requested more pills today. I had my surgery 10 days ago. I walk all the time and do some light movements. The last time I had an ostomy I found the combination of lgiht meals and walking to help my healing. I did take the pain meds for atleast a month off and on. Everyday was different. I could be good for 2 days and in hell for 2 days. good luck and keep me updated. I also had nerve damage in surgery. Can't use my right hand. West

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 4/14/2008 6:46 PM (GMT -6)   
billyboy- i still had some slight tenderness in my stomach, around the incision area for probably three or four months, not pain though.
Hiswill-i think anyone who has no pain that soon after surgery is some kind of super human! it shouldn't be nearly as bad of course but you would still be in pain.  I think i took pain killers for about three days after i got home, but i quit cause they were makign me sick to my stomach.  I was sent home with a 15day script.

New Member

Date Joined Mar 2008
Total Posts : 12
   Posted 4/14/2008 8:20 PM (GMT -6)   
Taking axtra vitamin C also benefitssurgery recovery, 100 - 2000 a day is what I went with. Helps the healing process. For the pain... I had a bowel resection from advanced Crohn's disease and then a blood clot the next day I came out from anethetic. I was under for 18 hours. So I was in bed almost 4 weeks after my surgery. But they set me up with a morphine pump for a number of days after the original surgery. So I had pain too... but it was taken car of when I needed it. Your likely still in that situation but the doctors are dropping the ball.

life scar
Regular Member

Date Joined Nov 2007
Total Posts : 35
   Posted 4/18/2008 6:06 PM (GMT -6)   
It has been just 1 year since my colonoscopy and re-section, I can remember I was in pain for at least 5 weeks and told not to do anything for 6 weeks apart from taking little walks, it was still quite tender for some months but not painfull. I also had to lie down often as I felt very weak.
Please take care, it was a big op and so you shouldn't be in a rush to get back to your normal duties just yet.

life scar
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