surgery w/out being sick?

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Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 4/14/2008 4:18 PM (GMT -7)   
Hi everyone! As usual, as my surgery date approaches I get 2nd thoughts. Here's why- I don't feel sick enough for surgery! It seems as if most of you had surgeries done wehn you were very, very ill. Currently, I am having about 8-10 bm's a day, no blood, very little D. I don't mind the frequency so much, but I do mind the urgency- when I have to go, I HAVE to go! Which does lead to the occasional accident. I am 6 weeks out from my last Remicade infusion, on a 6-8 week dosing schedule. My last colonoscopy showed about 10 inches of inflammation, & a whole bunch of inflammatory polyps. I am puzzled... I seem to be in a moderate UC flare right now. I plan to give it another week & call my GI, & to keep my surgery consult appointment next week to discuss it with the surgeon. I go to work, I go out with my family, I do most of the things I would normally be doing. It just doesn't seem severe enough to merit surgery right now. Of course, I could pre-emp any further issues by having surgery. And I do have an RV fistula which I'd like to see closed. But have any of you truly opted for surgery, without being terribly ill? I have been very, very sick with UC, & this is just not it.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
surgery scheduled 5/7/08- perm ileo
 
 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/14/2008 4:34 PM (GMT -7)   
well it would be better to have the surgery when you are NOT sick you will heal faster. I know that you don't feel sick enough now, but you have felt sick enough before that you were confident with surgery being the right thing.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/15/2008 10:07 AM (GMT -7)   
I had my last surgery in Feb 08 and was not outwardly very sick.  My doctor explained that although I was feeling good, by colon was very diseased.  He also said that the longer I went, the worse surgery would have been.  I have Crohn's, and I know everyone is different, but you have to do what is right for you.
 
Another bonus to surgery would be that you should be able to get off the nasty drugs.  I viewed that as a possitive.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/15/2008 12:01 PM (GMT -7)   
Eva,

If you feel that you have a good quality of life then there is no reason to pursue surgery at this point. It is true that it is much better to have surgery when you are in good health but if you aren't quite convinced your're ready you should cancel it.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 4/15/2008 1:27 PM (GMT -7)   
I appreciate the replies.. I do know that it's easier & healthier to
have surgery when one is not "sick". I think for me, to opt for surgery when I'm not doing too badly is just not gonna happen. I'm waiting for my GI to call me back right now. Lord knows what he'll say, but I just don't think the time is right for me to do it. It's always going to be an option, which is nice. And I now know so much about it I feel like I could do it myself! It may be cowardly, it may be false hope on my part.... Sue, you did hit the nail on the head- I just don't feel that my quality of life is so awful now to merit surgical intervention. Ugh... I hate this!
 
PS- I feel better- just spoke with my GI & explained what's going on (or not going, for that matter!). He told me what I already know, that basically I have to make the decision myself, & that if I don't feel like my quality of life is bad enough to do it, then don't do it. He also told me to keep doing what I'm doing, re. med-wise, & that he wanted to see me in a month or so. I told him I hoped he didn't think I was crazy.. he laughed & said I was crazy in a good way!



diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
surgery scheduled 5/7/08- perm ileo
 
 
 

Post Edited (Eva Lou) : 4/15/2008 3:38:53 PM (GMT-6)

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