Two holes better than one??

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 4/18/2008 7:12 PM (GMT -7)   
yeah  Yeah, they took the rectum back in Novemer. Doc said it might take a while for the would to heal up back there.  Well, it's about 6 months later and the would is still there and not showing signs of leaving anytime soon.  Surgeons says we need to get me on the VAC deal.  Uh huh, yeah  sure Doc, Nothing better than having a tube sticking out of my ass.  IS HE KIDDING!!
   Just another road block in front of me on my way............to..................i dunno.
 
Crohn's for what seems like forever
Bagged in August 2006
@ssless as of 11/2007
 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/18/2008 7:24 PM (GMT -7)   
Remember when I told you mine took 10 months to heal?? I wasn't kidding!! I was hoping yours would heal much sooner, but I guess it just had to be difficult... sad

Hang in there, you're almost done.
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Small Bowel Obstruction Surgery in '08, caused by adhesions.
Disease-free, medicine-free, and very thankful to be healthy again :)


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 629
   Posted 4/18/2008 7:24 PM (GMT -7)   
it can definitely take a long while. once you get through this you'll have a whole new life, believe me!!! i'm doing things now i haven't been able to do in 20yrs. so: chin up, you'll get through it and feel better soonm, although i know it absolutely sucks right now.

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 4/19/2008 2:05 PM (GMT -7)   
Thing is, i feel fine!! Probably the best health i've been in in years. Except for the open wound in my rear. The surgery was done last November, and sorta cleaned out again in late December after it got infected. Surgeon is saying that there is most likely a lot of dead tissue around the area and it has probably healed as much as it is going to unless they clean it out again. And he wants to put me on that VAC. I'd rather keep packing it and hope for the best. He pretty much told he i'd be home bound for like a month. NOT happening right now. Heck, whats the worst that can happen, it gets infected again?? If that happens maybe THEN i'll think of other options. The wound hasn't changed much in the last 2 months, so maybe it won't heal. But i'd rather wait. It's springtime in New England, i don't feel like looking at it through the window.
 
Crohn's for what seems like forever
Bagged in August 2006
@ssless as of 11/2007
 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/19/2008 7:48 PM (GMT -7)   

My surgeon cauterized (burned with silver nitrate) the tissue every couple of weeks to aid in the healing process. Has your surgeon done that to you? Also, are you still packing the wound to keep it from getting infected?


Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 4/20/2008 11:13 AM (GMT -7)   
Still packing. Twice a day. Wound looks fine ( from what i'm told ) and shows no signs of infection at all. Surgeon didn't really even bring up any other options. He seem set on the VAC deal. How did they go about the whole " cauterized" deal. Visits to the hospital? I'll have to bring it up next time i see him.

awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 629
   Posted 4/20/2008 6:20 PM (GMT -7)   
i had to get cauterized by silver nitrate several times.  my ET nurse did it in my house, it only takes about 5 seconds to do, then she packs it and you're done...no biggie.
 
--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 4/20/2008 8:48 PM (GMT -7)   
My doctor used the silver nitrate on me too. It seems to work well.

Slice, have you ever used a wound vac? My doctor actually used it on me in my vaginal and rectal area. It does do the trick. Helps in helping twice as fast as with just packing. The problem was trying to get a good suction in such a moist area. So, for the time I was able to use it, I'm glad I gave it a chance.

I'm back in surgery the end of May and I'll be going through the packing all over again too.

Good luck!

Mary

sosueme
Regular Member


Date Joined Mar 2007
Total Posts : 53
   Posted 4/20/2008 9:07 PM (GMT -7)   
Hey Slice you might not want to hear this but my hole in the butt took 5 yrs, to heal,went in the hospital every 3 months and the surgeon scraped off the scar tissue hoping it would heal, but it didn't so after many attempts and no luck a muscle from my inner thigh was graphed to fill the area.That did work but I developed a huge sore on my leg which later had to have a skin graphed done on it . All in all 5 yrs. , hope you don't have that long to heal. Sorry that my story , but hey that's a rare case . Good luck to you , and my thoughts are with you .
Sue

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 4/21/2008 8:20 AM (GMT -7)   
My rear is still healing and it will be a year on the 24th of this month. The skin was very fried from radiation and just had a harder time healing. It just feels like it 'pulls' now but it is much better than what it was 2 months ago. My doctor did say it can take a looooong time.
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 4/23/2008 4:10 PM (GMT -7)   
No pun intended but HOLY CR@P!! 2 years, 5 years, wow. Wasn't thinking this might take that long. Thing is the one hole kinda split into two parts, kinda coming together in the middle. For some reason one part is healing, and the other ( again, from what i'm told ) isn't showing much progress. But it seems strange that a part of the wound IS healing and part isn't. I'm gonna wait it out. One way or another i think it will close. Even if i need to use tape, staples, maybe glue it shut.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/23/2008 5:02 PM (GMT -7)   
Slice,
My surgeon told me that those of us with Crohn's are typically the slowest healers after @ss removal surgery. As if this disease hasn't done enough to us, right?!?

I like the idea of taking matters into your own hands. I think Gorilla glue would do the trick! At least you haven't lost your sense of humor.

Hang in there, it will heal... eventually! eyes
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Small Bowel Obstruction Surgery in '08, caused by adhesions.
Disease-free, medicine-free, and very thankful to be healthy again :)


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 4/24/2008 3:43 AM (GMT -7)   
Slice,

Although I didn't have the same surgery I had some very stubborn wounds and the silver nitrate worked very well for me.

I hear you about being stuck inside during springtime. Although your Sox are playing great (even without Big Papi in a slump) so they could provide a nice diversion.

Richard
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 


Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 4/24/2008 6:25 PM (GMT -7)   
Ahhhh yes. Although the best diversion would have been the Bruins taking out the Habs, i can deal with another possible World Series with the Sox. At least the Yankees are near the bottom.
I think i'll hold out on calling my surgeon back. He wanted to know what date i'd like for the VAC deal. When i talk to him i'll have to ask about the whole nitrate thing first.
I'm really wondering.....what would happen if i stopped packing it? I assume it would just close up and increase the risk of infection. But couldn't it close up AND JUST HEAL?!?! I'm thinking of not packing it for a few days and see what happens.

Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 4/30/2008 6:19 PM (GMT -7)   
So i have an appointment with my surgeon this friday.  I'm trying to get 20 questions together for him. One of those won't be 'should i call my mother'. 
  Most of what i'm going to ask him is what if i just keep up with the packing for a few more months, what would happen.   I'd love to speed up the healing, but not if that includes me being housebound for a month or so. 

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 5/28/2008 1:59 PM (GMT -7)   
Sorry to bump an old topic but I have a stupid question.... What hole is it that you're all talking about? The anus/hole you used to defecate from? Why is it a wound now?

I always wondered, when you have a colectomy, do they just sew up your anus or how does that work? It seems that if there's nothing attached and you're pooping from the hole in your stomach, there's no need to have the other one open. They never really seem to explain that part of the surgery anywhere I look!!!
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


tpoof
Regular Member


Date Joined May 2008
Total Posts : 34
   Posted 5/28/2008 2:07 PM (GMT -7)   
God! and here I am feeling sorry that I have to wear a colostomy.. shame,shame...

Slice, I wish you all the best! I'll say a prayer for you! Godspeed on your healing!!!!!
a perforated Diverticlum survivor and colostomy wearer, awaiting resection

May 02/2008


Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 6/8/2008 4:53 PM (GMT -7)   
Whoa, sorry for missing this. Yes edie, my anus is now sewn shut. Didn't need it anyway. And they took my rectum. But, didn't need that either. In order to remove the rectum and the area around it that was infected with disease, they not only go through the incision they made to take out my colon, but they also need to make another incision just next to the anus to remove everything else. Thats whats taking a while to heal up. Problem is since there was a lot of infected area back there along with fistulas, it's having a tough time hearling. Which my surgeon actually told me about long before i had the surgery, so it's not a surprise.
It's still there, still looks about the same. I have another follow up appt with my surgeon this week. Or next week, can't remember. But i'll bring up the burning the tissue deal. Hope that works.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 15, 2017 7:23 AM (GMT -7)
There are a total of 2,905,690 posts in 318,883 threads.
View Active Threads


Who's Online
This forum has 158238 registered members. Please welcome our newest member, confused132.
268 Guest(s), 13 Registered Member(s) are currently online.  Details
NicHostetler, John_TX, mattamx, LymeSick 🌟, Worriedsicked, tickbite666, SapphireBaby, AnxietyKelller, Lynnwood, Hibee, Herophilus, Saipan Paradise, iPoop