I was scared too going in and worried that I would spend all my time on the toilet, but I also hated the loop ostomy and wanted it gone! The pain from the surgery was minimum compared to the other two surgeries and I was out of the hospital in 4 days. I got up the day of the surgery and walked down the hall because I didn't want gas pains and I know that walking gets the bowels to moving. Once you pass gas, they will allow you ice chips, next day water, next day solids. Once they see that you can tolerate solid food, they let you go home, but don't overdo it, eat small.
I have to say that I am very pleased with the results, there isn't the urgency that I had with UC, and I really don't know how often I go to the bathroom, usually when I have to pee. Depending on how late at night I eat something I will get up once and I usually wake up feeling like I have to pee. I can't have milk products or spaghetti sauces right now, they cause "butt burn/itching" and that's the worst part of all of this. But it's probably my fault, because I'm really not being careful with what I'm eating. I would suggest getting Calmoseptine ointment at your local drug store (they usually have it behind the prescription counter, but you don't need a script) and apply it after each bowel movement. I would also get the softest toilet paper (I am using Charmin soft) and I wet it and pat (not wipe) and pat with dry tissue. It's really only bothering me after dinner and I just take a warm bath and that seems to help too. I've been out and about since last week, I don't look for toilets and can't believe the energy I have. I've also gained a much needed 10 lbs in 2 1/2 weeks and need about 20 more to get back to where I was before I got sick.
I hope that all goes well with your surgery and you are back home and recovering before you know it, please let me know how it goes and if you have any other questions, fell free to ask.
I'm kind of confused as to why they would keep your rectum if your ostomy is permanent. I was under the assumption that they would remove the rectum and close the anus if it were permanent and then you wouldn't be experiencing pain.
Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
Total colectomy August 10, 2007 -2nd step J-pouch formation -January14, 2008 -3rd step -April 14, 2008