Bleeding from the rectum/post surgery

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HisWill
Regular Member


Date Joined Mar 2008
Total Posts : 43
   Posted 4/25/2008 6:57 PM (GMT -7)   
Hello..I had a subtotal collectomy.ileostomy three weeks ago. The first few days after surgery I did have some bleeding from the rectum. My surgeon said that was normal. But now it is three weeks later and I from time to time I still get bright red blood from the rectum. Any thoughts on this? thanks. Marie

HisWill
Regular Member


Date Joined Mar 2008
Total Posts : 43
   Posted 4/26/2008 3:56 AM (GMT -7)   
Also..I will call my doctor to find out if this is ok..too.. I was just wondering if anyone here experienced this and if it was anything serious. thanks again. Marie

tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 4/26/2008 10:11 AM (GMT -7)   
Marie,
When they leave a part of the rectum, it is normal to have a bloody/mucous discharge. As long as you aren't experiencing any pain or spasms you are fine. After my colectomy, I had the discharge and began having horrible spasms in my rectum that only prednisone would help, then after my second step when they created a pouch to the remaining rectum the pains stopped but I still had the discharge until my takedown.
Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
Total colectomy August 10, 2007 -2nd step J-pouch formation -January14, 2008 -3rd step -April 14, 2008


HisWill
Regular Member


Date Joined Mar 2008
Total Posts : 43
   Posted 4/27/2008 5:45 PM (GMT -7)   
Theresa, Thank you for your reply. I have had pain and spasms and was in the ER last Monday nite. However, a CT scan showed that everything was fine. Some folks from the forum thought that the pain and spasms might be gas. I tried the Gas X but that didnt help with the pain and spasms so I dont know if it actually was gas or not. As of today though, the blood has stopped and the pain is gone! So I am sure I have nothing to be concerned about. I have an appt with surgeon next week and I will bring this up to her just to be sure.

What is a takedown? Just curious. Thanks again, Marie

tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 4/27/2008 7:11 PM (GMT -7)   
I've had the Jpouch surgery where they pull down the small intestines and create an internal pouch to hold your stools and attach it to the rectum (mine was done in 3 steps/surgeries) and takedown is when they close the ileostomy and you go to the bathroom through your rectum.

The reason I still had pain is because the remaining rectum was still inflamed with ulcerative colitis and that didn't go away until the pouch was created.

I'm assuming that you still have your rectum? Was your surgery due to UC or CD?
Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
Total colectomy August 10, 2007 -2nd step J-pouch formation -January14, 2008 -3rd step -April 14, 2008


candyland
Regular Member


Date Joined Nov 2007
Total Posts : 98
   Posted 4/28/2008 8:58 AM (GMT -7)   

Theresa,

How are you doing since your TD?  Mine is scheduled for May 9th and I'm very nervous about using the bathroom the "standard" way again.  My j-pouch surgery was done in 2 steps so I had the 1st step in October where my surgeon removed my entire colon, most of my rectum, and created the j-pouch during the same surgery.  Step 2, the takedown, was supposed to happen before now, but I was hesitant from old UC fears (pain, frequency, loss of control, etc.) plus I got sick with the flu and pneumonia back in February and couldn't schedule it.  Anyway, it's almost here now and as much as I can't wait to "bag the bag," I'm still afraid of what's to come.  Please share your experiences, both good and bad.

Thanks,  -Laura

 


HisWill
Regular Member


Date Joined Mar 2008
Total Posts : 43
   Posted 4/28/2008 5:33 PM (GMT -7)   
Theresa, I had my surgery because of chronic constipation and my because the sphincter muscles do not work well anymore. I have scleroderma and this is what caused problems with my large intestine. I will have a permanent ileostomy due to the reason why I had to have one in the first place. I did get four doctors' opinions before I decided to do this. I did hear from a few other people with scleroderma who had to have the same surgery. My doctor said that most of her patients have the surgery due to OC or CD so I was nervous about getting this done. But after a lot of research and prayer, I was at peace with having the surgery. Marie

tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 4/30/2008 7:32 PM (GMT -7)   
Laura,
I was scared too going in and worried that I would spend all my time on the toilet, but I also hated the loop ostomy and wanted it gone! The pain from the surgery was minimum compared to the other two surgeries and I was out of the hospital in 4 days. I got up the day of the surgery and walked down the hall because I didn't want gas pains and I know that walking gets the bowels to moving. Once you pass gas, they will allow you ice chips, next day water, next day solids. Once they see that you can tolerate solid food, they let you go home, but don't overdo it, eat small.

I have to say that I am very pleased with the results, there isn't the urgency that I had with UC, and I really don't know how often I go to the bathroom, usually when I have to pee. Depending on how late at night I eat something I will get up once and I usually wake up feeling like I have to pee. I can't have milk products or spaghetti sauces right now, they cause "butt burn/itching" and that's the worst part of all of this. But it's probably my fault, because I'm really not being careful with what I'm eating. I would suggest getting Calmoseptine ointment at your local drug store (they usually have it behind the prescription counter, but you don't need a script) and apply it after each bowel movement. I would also get the softest toilet paper (I am using Charmin soft) and I wet it and pat (not wipe) and pat with dry tissue. It's really only bothering me after dinner and I just take a warm bath and that seems to help too. I've been out and about since last week, I don't look for toilets and can't believe the energy I have. I've also gained a much needed 10 lbs in 2 1/2 weeks and need about 20 more to get back to where I was before I got sick.

I hope that all goes well with your surgery and you are back home and recovering before you know it, please let me know how it goes and if you have any other questions, fell free to ask.

Marie,
I'm kind of confused as to why they would keep your rectum if your ostomy is permanent. I was under the assumption that they would remove the rectum and close the anus if it were permanent and then you wouldn't be experiencing pain.
Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
Total colectomy August 10, 2007 -2nd step J-pouch formation -January14, 2008 -3rd step -April 14, 2008


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/30/2008 7:48 PM (GMT -7)   
they sometimes leave the rectumjust to avoid the other surgery, obviously the less surgeries you have the better for you

HisWill
Regular Member


Date Joined Mar 2008
Total Posts : 43
   Posted 5/1/2008 6:12 AM (GMT -7)   
Theresa..My doctor explained that it wasnt necessary for me to remove my rectum and sew up my anus and she wanted to avoid me having more surgeries. So do you think that the pain is from the rectum still being there? Marie

HisWill
Regular Member


Date Joined Mar 2008
Total Posts : 43
   Posted 5/1/2008 6:14 AM (GMT -7)   
I just wanted to note that the spasms and pain are not in the rectum but on the lower right side under my stoma..so maybe you thought that the pain and spasms were in my rectum.

tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 5/1/2008 6:43 AM (GMT -7)   
I did think that the pain was from the rectum, sorry. After my colectomy I did have pains on both of my sides for a couple weeks especially when I would try to lie down on either side. It was almost like something was shifting over to where my colon used to be and was causing a sort of pinching pain but it went away after about 3-4 weeks.

I hope the pain you are having goes away for you soon.
Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
Total colectomy August 10, 2007 -2nd step J-pouch formation -January14, 2008 -3rd step -April 14, 2008


HisWill
Regular Member


Date Joined Mar 2008
Total Posts : 43
   Posted 5/1/2008 1:11 PM (GMT -7)   
Thank you Theresa..hopefully the pain wil subside soon.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/1/2008 6:19 PM (GMT -7)   
i had pinching pains in my stomach,near my stoma for a long time after my surgery. I don't even know how long they lasted, but they are gone now,

Dave960
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/15/2012 11:54 AM (GMT -7)   
Theresa, Hi I am 16 years old and was just diagnosed with Ulcerative Colitis 3 months ago. I have been in the Hospital for a month and after trying all of the different medications I had a total colectemy last Friday. They released me on Wednesday partially because I begged them to being in there for so long and now one week after surgery I'm just about eating whatever staying away ofcorse from too much fiber, raw vegetables, certain raw fruits, and spicy foods for now.
I have lost over 30 pounds which is driving me nuts so Ive been trying to eat like crazy which includes a lot of sugary and fatty desserts which I've never been crazy about. Yesterday I started having quite a bit of rectal bleeding and started back on prednisone and took a suppository, but they may want me to go back to the hospital and have the inner pinning of the last part of my colon removed which I am not sure how big of an operation that is and am a little nervous about going back to the hospital.

Anyways thats my situation. I read this forum and you seem to have gone through exactly what I am so advice in any area from diet and weight gain, to the surgeries, to activity with the iliostomy bag, to the rectL bleeding and the extra step of removing the lining, and whatever else you could think of would help me so much.

Also I was wondering if you had your surgeries done laparoscopic like I did?
And I was wondering how's your life now?!

I'm not even sure if you still look at this but if you do please help me out I do have a strong faith and lots of loving friends and family, but this has been pretty scary at times and I really need advice.

Thanks, David
P.S. Hope you forgive the spelling and grammer been out of school for a month.

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 4/15/2012 11:18 PM (GMT -7)   
I had a laparoscopic surgery. They removed my colon but left my rectum so I can get a Jpouch later. I passed bloody mucous daily from my rectum until I asked my GI if I could start taking Canasa again - I did and it has helped greatly.

I'm not sure what the lining removal surgery would entail but if you are getting a Jpouch later too then your rectum will just be removed then so it seems unnecessary to remove the lining now... give the suppositories a week or so and see if they help so you can avoid more surgery.

Boost and Ensure are good for gaining weight. I've gained back 20lbs since my UC and surgery, easily
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 4/15/2012 11:42 PM (GMT -7)   
i just had a total colectomy with an ileostomy a few weeks ago on march 22nd. i too am bleeding from my bum.
the discharge used to be clear, then it got kind of clear/yellowish, then it looked like the color of cantelope or a ruby red grapefruit. kinda of pinkish-orange.
now it is a darker pink. but not quite red yet. although sometimes i see bright red on the toilet paper.

my dr said i could still have some UC inflammation in my rectum and a suppository would clear it up. however, he forgot to give me a prescription.
will have to get one from surgeons on friday when i see them.

its quite weird to have anything come out of my bum, especially liquid.

i also have sharp cramping pains sometimes on my left side and occasionally on my right side as well. i am figuring they are gas pains or something ???

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 4/15/2012 11:47 PM (GMT -7)   
I had occasional sharp pains too - never bothered asking about them but they went away over time
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

Dave960
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/16/2012 5:28 PM (GMT -7)   
Alright thanks Theresa I've been having a hard time getting in touch with my doctors but it sounds like there just going to put me on more prednisone which im not crazy about since ive been on it so long but that and the suppositories will hopefully be enough.

The sharp pains that feel like organs moving around or something?
The best way I found to avoud them is not to lay flat! The first night I went home I did and it was miserable and thought I came home too early. The next night I slept in a recliner and the pains were not completely gone but it helped so much.

Did anyone else get a bad acne looking rash on there chest and face taking any of the different medicines? I assume it was the high doses of IV steroids they gave me in the hospital. But they also gave me 4mp and two doses of remicade pretty close together.
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