does any one with colonic inertia have something called Visceral Neuropathy/Over sensitivity....? i was just diagnosed with this as it affects my whole body but takes place in my Nervous System...my NS does not know how to slow down and on overdrive and very very sensitive to too much stimulation and so i am now on an antiepileptic called Neurontin at night, low dose to calm those nerve endings down
does not constipate me more thankfully
here's the thiing i had a total colectomy two yrs ago and past yr back on over counter laxatives as i still have my rectum in and ileum...at this point no more surgery but if to be docs recommend just go back to ostomy...for now trying to decrease laxatives in time not to lose more control of my pelvic area
good news is monametry test showed my upper gi is ok! for past 10 yrs things weren't working so well but turns out mainly due to constipation issues...so no gastroperisis or dysmotilitly of upper gut
but due to laxativews and nausea with constipation I can't eat alot without getting sick....i am eating what i can mini meal style throughout day i graze really....but Miralax does not work for me so just stickign to suppositories or Fleet.
docs tell me to eat more now that they know my stomach is ok but kinda hard to go back to just eating when you still get backed up down below and afraid every time you eat you are going to not be able to go or need to take more laxatives which hurt you more.
i am very underweight but try to drink my calories and eat softer stuff that is easier to go through me.
any foods that work for you?
i find carbs stop me up alot quicker even though iw ant them so badly for energy!
i crave protein nonstop but that too slows my gut down
well babbled on but any one out there that can relate please let me know??