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New Member

Date Joined Apr 2008
Total Posts : 8
   Posted 4/28/2008 11:32 AM (GMT -6)   
Long story short....
1/2001- Diag- Crohn's
10/2004- partial (80%) colectomy- temporary Ileo
1/2005- ileo reversal
03/2005- temp ileo again- after losing approx 40lbs, rectum still a "no-go"
04/01/2008- ileo reversal
04/28/08- I'm getting worried again. Lost 25 lbs and I can't slow it down yet. Everything runs through me. I take Imodium with no effect. I'm currently on a choleterol drug named "Welchol". This is supossed to slow things down but it has no effect either.
At what time should I start getting concerned.

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 4/28/2008 5:55 PM (GMT -6)   
Welcome to Healing Well. I'm sorry you've had such trouble. sad

I would be concerned if I lost that much weight. What does your doctor think about it? Is the Crohn's active in your rectum? That's where I had it, and I have to tell you that I've felt great ever since I had my rectum removed. It's a very difficult decision to make, but once I made it, I've been disease-free and healthy ever since. I've also gained weight in a healthy way and have been able to keep it on.

If it meant you could be disease-free, would you be willing to have your rectum removed and have a permanent ileostomy? If that's where your disease is, it's something to think about and discuss with your doctor.
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Small Bowel Obstruction Surgery in '08, caused by adhesions.
Disease-free, medicine-free, and very thankful to be healthy again :)

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