Lew, I am glad your son is on the mend. When she is in a flare, she just wants it over so she can get on with her life. (And when she is in remission, she is a powerhouse!)
Summerstorm, thanks for the advice. We are very open and upfront about the whole situation (as is her doctor). We had done quite a bit of research so when he first mentioned possibly seeing a surgeon because of dysplasia, we were prepared.
We have looked at the photobucket page and that, along with the mostly positive outcomes here, have really helped.
She has really approached this whole UC stuff with a very positive attitude. She was dealt this disease and she (along with our support) will fight it and win. She reads the UC forum daily (posts once in awhile). I think she glances here but not as often. I have looked at pictures people have posted about their ostomies (found through this forum). She admits she is just not quite ready. But she can tell you all the technical stuff about them! One step at a time. She also has the support of some amazing friends. All that will get her through this.
If you think of anymore questions to ask, please let me know.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day, 50 mg prednisone
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!